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West Nile Virus/encephalitis Triggered My Celiac

Cecila

By Cecila
in Coping with Celiac Disease

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Cecila Newbie
Cecila
Posted

Hi, I'm new here. I wondered if anyone else had their celiac triggered by west nile virus or any other virus?

Up until two and a half months ago, I thought I was only dealing with the encephalitis, which I have a mild case of, but still debilatating at times. Some of the symptoms are very similar. A few months after the initial WNV/encephalitis symptoms (which I got by being bit by that tiny creature the mosqito) I started with a slew of symptoms so out of proportion, I thought I was dying, and no doctor would help, even with the blood tests of the WNvirus in their hands. One doctor said, the good news is you are immune to west nile virus, and then wanted to prescibe muscle relaxers and a neurologist wanted to give me prozac. No thanks to either, I wanted answers. It took me over a year to find out about Celiac disease. Since I went wheat and gluten free over 2 mos. ago, alot of my symptoms have improved, but not enough to feel anywhere near normal, but I guess that's still a dream, to be "normal" again. I hear it does get better. I only hope it does before my relationship falls apart. He's been so patient for the most part, but it's getting to him, we argue alot. I can't seem to get him interested into reading about this, or looking for support himself. He supportive in paying for doctors, and I not having to work outside the house, however, he cannot grasp the emotional support that I need. Sometimes I think he's embarrassed in front of his friends, until we meet someone who understands what we are going through, then he's very open.

Anyways, just curious about the above question. Great to have this support systom. I found there is a support group in my area too which meets bi-monthly. I look forward to attending.

Thanks,

Elsa

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Rusla Enthusiast
Rusla
Posted

It can take quite awhile to feel normal, I still don't but then I really don't know what normal is as, I don't think I ever was. I have also only been gluten-free for two months and the least little bit of gluten (by accident) takes me down that awful road.

You probably had Celiac long before WNV but it brought everything to a head. Many of us here have had Mono and that is when it went mad for us. My mono was a very long time ago. So for me to have normal will be a surprise.

Welcome to the group. Tons of support and good information here.

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