Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whats Going On?!?


Moongirl

Recommended Posts

Moongirl Community Regular

I stated to feel great about a month into my gluten-free diet, but 2 weeks ago i started getting there awful pains right between my ribcage down to my belly button, the pain will sometimes radiate to the sides of my ribs....I went to see my Dr and even touching that area between my ribs made it hurt. The pain comes and goes now, but still hanging around. He put my on prilosec, but i dont think thats what it is....

They did a full CAT scan of my abs/pelvic area, upper GI series Xrays, and blood tests for my liver functions...everything so far checks out ok....On top of this i lost another few pounds which i cant afford to lose. The only good thing i noticed is that my fingernails grew fast and long and they are not chipping like before, which means something is absorbing. But whats the deal with all this other stuff?!?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

I have gotten the same type of pains. However, I have in these two months been accidentally glutened. It could be an accidental glutening or it could be the body continuing to cleanse itself. With many years of gluten in our bodies it could take a fair bit of times to cleanse the body.

julie5914 Contributor

I have heard of a lot of people getting better and then worse. I had to cut out dairy - after I ate it, esp. with acidic stuff (anything with both tomatoes and cheese was killer) I would have double over pain. Your description dounds more like an ulcer, but they would have found that in your tests. Did they test for small intestine bacterial overgrowth (h pylori)? Could be that or a problem with a food other than gluten, such as dairy, soy, corn, nightshades, or a number of other suspects.

loraleena Contributor

First if it is heartburn do not take prilosec. Bad stuff. Try deglycerized licorice tablets by Enzamatic therapies. It helped me. Also a teaspoon of applecider vinegar before meals is supposed to help. Usually there is not enough acid rather than too much. Prilosec will only make it worse in the long run. I agree with the above post about ulcer. Gluten intolerance or celiac can set you up for bacterial problems, candida overgrowth and parasites. Good luck.

Moongirl Community Regular
First if it is heartburn do not take prilosec. Bad stuff. Try deglycerized licorice tablets by Enzamatic therapies. It helped me. Also a teaspoon of applecider vinegar before meals is supposed to help. Usually there is not enough acid rather than too much. Prilosec will only make it worse in the long run. I agree with the above post about ulcer. Gluten intolerance or celiac can set you up for bacterial problems, candida overgrowth and parasites. Good luck.

Well they ruled out the ulcer, nothing in any of my test suggests that i have one...My doc suggested that i stay on prilosec....i personally dont want to, im going to see my GI today too see what he thinks....but all my blood work and tests were ok...so im not sure....??

julie5914 Contributor

My doctor told me a good way to test if you have too much or too little acid is to take a tablespoon or two of lemo juice after you get your symptoms. If they get worse, you have too much acid. Better then too little acid. I had too much acid, despite what I have read about some celiacs having too little. The lemon juice gave me a lot more pain and indigestion that what I had before I took it. Now I take a Pepcid AC before acidic meals. Haven't tried Prilosec. I was on Protonix for a while, but insurance gave me trouble, so I gave up.

eeyor-fan Contributor
I stated to feel great about a month into my gluten-free diet, but 2 weeks ago i started getting there awful pains right between my ribcage down to my belly button, the pain will sometimes radiate to the sides of my ribs....I went to see my Dr and even touching that area between my ribs made it hurt. The pain comes and goes now, but still hanging around. He put my on prilosec, but i dont think thats what it is....

They did a full CAT scan of my abs/pelvic area, upper GI series Xrays, and blood tests for my liver functions...everything so far checks out ok....On top of this i lost another few pounds which i cant afford to lose. The only good thing i noticed is that my fingernails grew fast and long and they are not chipping like before, which means something is absorbing. But whats the deal with all this other stuff?!?

Any one who knows me, knows the hell I've been through since the beginning of Dec....Started with a bad cold, then horrable acid reflux (still fighting that), and then what they thought was a rectal prolapse...I was sent to a surgeon but the surgeon doesn't think it was a rectal prolapse but instead some sort of disfunction with the muscles in the intestines. I too have the same pain your describing and been sent for more tests/ rushed to hospital in the last 8 weeks more times than I care to account. I've come to the conclusion that doctors have no clue about anything. I think it has a lot to do with the body going into "shock" because after so many years of eating gluten and then BANG this whole food group is gone ! Anyway, I'm just biding my time because the surgeon is refering me to a colonic specialist for even more tests!

Hugs

Bridget


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Moongirl Community Regular
Any one who knows me, knows the hell I've been through since the beginning of Dec....Started with a bad cold, then horrable acid reflux (still fighting that), and then what they thought was a rectal prolapse...I was sent to a surgeon but the surgeon doesn't think it was a rectal prolapse but instead some sort of disfunction with the muscles in the intestines. I too have the same pain your describing and been sent for more tests/ rushed to hospital in the last 8 weeks more times than I care to account. I've come to the conclusion that doctors have no clue about anything. I think it has a lot to do with the body going into "shock" because after so many years of eating gluten and then BANG this whole food group is gone ! Anyway, I'm just biding my time because the surgeon is refering me to a colonic specialist for even more tests!

Hugs

Bridget

OMG that sounds awful...well the lastest thing with me is the GI that dx with celiac disease, i went to him and he thinks b/c of all the inflamtion i had due to the damage and the irritation, that i could be having spasms. He said usually belly button pain is connecting with ur small intestines....and the stomach pain (which comes and goes, kind of a gnawing thing) could also be due to the same reason. he saw no ulcers/reflux in the CTscan or GI xrays....so he gave me this med called levsin...took it once, seemed to help, but the side effects were god awful for me, i would rather deal with the stomach spasms....

AND im putting 2 and 2 together here, this all started right after i ate McD's french fries, and we all know whats going on with that mess right now. OVer time though it is getting a little better, still hasnt gone away...

julie5914 Contributor

Have you had your gall bladder checked? Sometimes they can't see it in regular scans - it is kinda hidden.

Moongirl Community Regular
Have you had your gall bladder checked? Sometimes they can't see it in regular scans - it is kinda hidden.

Actually i dont have one! lol :D

had it removed 4 yrs ago

julie5914 Contributor
:lol: That's funny. Well at least you can rule out one thing!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.