Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Insomnia/cortisol Levels


Modism

Recommended Posts

Modism Newbie

Hello everyone!

I'm new to the boards, I found this site yesterday when I was looking for a good recipe for gluten free gnocchi. Yum yum.

So, I was diagnosed with gluten intolerance less than a month ago. (well, actually not really.) I forced my GP to give me a blood test for celiac disease, the test results... well. Both my IgA levels were normal, my IgG levels though were sky high. So, my GP is like, meh, whatever you don't have anything. After suffering all my life with IBS, I did not like this answer. I want to find out what my problem is! So, I got a second opinion and that doctor said I could have celiac disease, so I'm on a gluten free diet. I'm vegan as well, so I haven't been on dairy and all that for 10 years, so I know that's not the problem.

So, my problem is that on this gluten free diet, my isomnia has gotten 10x worse. My doctor (the 2nd opinion one) says it's my cortisol levels, they're all out of whack. Like, they're high during the night and low during the day. Does anybody know a way to naturally lower them during the night and raise them during the day? I can't fall asleep till after 4am and I'm constantly tired. I do suffer from fatigue (due to the IBS) so, I get B12 shots, but they don't seem to be helping.

So, if anyone has any suggestions on the cortisol/fatigue issue that'd be great.

Also, to Celiacs, what did your blood tests say? I want to get a colonoscopy done to make sure. (I got diagnosed with IBS without it, they did some stomach endoscopes and intestinal x-rays instead). The blood test cost over $200, and I don't want to pay the money for a biopsy. I can't afford it. :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eleep Enthusiast

I don't know about how to deal with a reversal of cortisol patterns, but I do know that regular exercise (especially aerobic exercise) can help to manage high cortisol levels. Basically, anything that's good for dealing with anxiety -- meditation, exercise, etc.... will help regulate cortisol levels. Maybe this will also help you to reset your natural rhythms.

ruthellen Newbie
Hello everyone!

I'm new to the boards, I found this site yesterday when I was looking for a good recipe for gluten free gnocchi. Yum yum.

So, I was diagnosed with gluten intolerance less than a month ago. (well, actually not really.) I forced my GP to give me a blood test for celiac disease, the test results... well. Both my IgA levels were normal, my IgG levels though were sky high. So, my GP is like, meh, whatever you don't have anything. After suffering all my life with IBS, I did not like this answer. I want to find out what my problem is! So, I got a second opinion and that doctor said I could have celiac disease, so I'm on a gluten free diet. I'm vegan as well, so I haven't been on dairy and all that for 10 years, so I know that's not the problem.

So, my problem is that on this gluten free diet, my isomnia has gotten 10x worse. My doctor (the 2nd opinion one) says it's my cortisol levels, they're all out of whack. Like, they're high during the night and low during the day. Does anybody know a way to naturally lower them during the night and raise them during the day? I can't fall asleep till after 4am and I'm constantly tired. I do suffer from fatigue (due to the IBS) so, I get B12 shots, but they don't seem to be helping.

So, if anyone has any suggestions on the cortisol/fatigue issue that'd be great.

Also, to Celiacs, what did your blood tests say? I want to get a colonoscopy done to make sure. (I got diagnosed with IBS without it, they did some stomach endoscopes and intestinal x-rays instead). The blood test cost over $200, and I don't want to pay the money for a biopsy. I can't afford it. :P

You may want to read up on folic acid for the control of your cortisol level.

Also you mention getting a colonoscopy to check the celiac disease diagnosis; actually they can't tell doing a biopsy that way only going through the mouth and stomach (encoscopy) and doing a biopsy in the intestines that way

ruth

Hello everyone!

I'm new to the boards, I found this site yesterday when I was looking for a good recipe for gluten free gnocchi. Yum yum.

So, I was diagnosed with gluten intolerance less than a month ago. (well, actually not really.) I forced my GP to give me a blood test for celiac disease, the test results... well. Both my IgA levels were normal, my IgG levels though were sky high. So, my GP is like, meh, whatever you don't have anything. After suffering all my life with IBS, I did not like this answer. I want to find out what my problem is! So, I got a second opinion and that doctor said I could have celiac disease, so I'm on a gluten free diet. I'm vegan as well, so I haven't been on dairy and all that for 10 years, so I know that's not the problem.

So, my problem is that on this gluten free diet, my isomnia has gotten 10x worse. My doctor (the 2nd opinion one) says it's my cortisol levels, they're all out of whack. Like, they're high during the night and low during the day. Does anybody know a way to naturally lower them during the night and raise them during the day? I can't fall asleep till after 4am and I'm constantly tired. I do suffer from fatigue (due to the IBS) so, I get B12 shots, but they don't seem to be helping.

So, if anyone has any suggestions on the cortisol/fatigue issue that'd be great.

Also, to Celiacs, what did your blood tests say? I want to get a colonoscopy done to make sure. (I got diagnosed with IBS without it, they did some stomach endoscopes and intestinal x-rays instead). The blood test cost over $200, and I don't want to pay the money for a biopsy. I can't afford it. :P

Modism Newbie

Thanks for the replies.

Yes, I guess I should look more into the B vitamins, I suppose getting B12 shots isn't always enough. If I was low on B12 levels it could be very well possible that I'm deficient for folic acid as well.

And to ruth, I don't really understand your response about the colonoscopy... can you please explain further?

tiredofdoctors Enthusiast

I have HORRIBLE insomnia. Especially since going gluten-free, too. I hadn't really thought about it until I read your thread. In the past, I've had low DHEA and high cortisol levels (they have a converse relationship) -- and had to have B12 injections -- didn't think about the cortisol issue. Think I will ask my endocrinologist about testing for those -- I'm having a bunch of bloodwork done next visit anyway, why not a little more???? Lynne

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

    2. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    3. - Seabeemee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    4. - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      EMA Result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,164
    • Most Online (within 30 mins)
      7,748

    Kellyc79
    Newest Member
    Kellyc79
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
    • trents
      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done?
    • Seabeemee
      My Doctor messaged me that I have no sign of Celiac disease so until I meet with her next week I don’t know what the labs mean. I am being evaluated by my new GI for Celiac disease because of digestive issues (bloating, distention, fullness in mid section, diarrhea).  I also have been diagnosed with GERD and some associated issues hence the endoscopy. I also was diagnosed with NAFLD after an abdominal CT scan in December - which surprises me because I gave up alcohol 5 years ago, workout 5 days a week, cardio / weights and cook from scratch every night. Anecdotally,  I do feel better when I do not eat a lot of carbs and have been staying away from gluten 95% of the time until my follow up.  History: I had an emergency bowel obstruction operation in August 2021 for a double closed loop obstruction, open surgery removed 40 cm of my small intestine, my appendix, cecal valve and illeocectomy. Beside the fact that this put me in the situation of no longer being able to absorb Vitamin B12  from my diet and having to  inject Vit B 12 2x a month, I also became Iron deficient and am on EOD iron to keep my levels high enough to support my Vitamin B12 injections, as well as daily folic acid. I tested positive for pernicious anemia in 2022 but most recently that same test came back negative. Negative Intrinsic Factor. My results from the biopsies showed 2nd part of Duodenum, small bowel Mildly patch increased intraepithelial lymphocytes with intact villious architecture. Comment: Duodenal biopsies with normal villous architecture and increased intrepithelial lymphocytes (Marsh I lesion) are found in 1-3% of patients undergoing duodenal biopsy, and an association with celiac disease is well established however the specificity remains low. Similar histologic findings may be seen in H pylori gastritis, NSAID and other medication use including olmesartan, bacterial overgrowth, tropical sprue and certain autoimmune disorders. So my GI ordered Labs for Celiac confirmation: Sorry I couldn’t upload a photo or pdf so typed below: TEST NAME                               IN RANGE and/or RESULTS RESULTS:  IMMUNOGLOBULIN A :           110 GLIADIN (DEAMIDATED) AB (IGG, IGA)                            <1.0 GLIADIN (DEAMIDATED) AB (IGA)                                     <1.0 GLIADIN (DEAMIDATED) AB (IGG)                                    <1.0 TISSUE TRANSGLUTAMINASE ANTIBODY, IGG, IGA TISSUE TRANSGLUTAMINASE AB, IGG                                     <1.0 TISSUE TRANSGLUTAMINASE AB, IGA                                     <1.0 INTERPRETATION: <15.0 ANTIBODY NOT DETECTED  > OR = 15.0 ANTIBODY DETECTED RESULTS: HLA TYPING FOR CELIAC DISEASE INTERPRETATION (note The patient does not have the HLA-DQ associated with celiac disease variants) More than 97% of celiac patients carry either HLA-DQ2 (DQA1*05/DQB1*02) or HLA-DQ8 (DQA1*03/DQB1*0302) or both. Genetic counseling as needed. HLA DQ2 : NEGATIVE HLA D08: NEGATIVE HLA VARIANTS DETECTED: HLA DA1* : 01 HLA DA1* : 05 HLA DQB1*: 0301 HLA DQB1*: 0501 RESULTS REVIEWED BY: Benjamin A Hilton, Ph.D., FACMG I appreciate any input, thank you.         
    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.