Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Insomnia/cortisol Levels

Modism

By Modism
in Related Issues & Disorders

Recommended Posts

Modism Newbie
Modism
Posted

Hello everyone!

I'm new to the boards, I found this site yesterday when I was looking for a good recipe for gluten free gnocchi. Yum yum.

So, I was diagnosed with gluten intolerance less than a month ago. (well, actually not really.) I forced my GP to give me a blood test for celiac disease, the test results... well. Both my IgA levels were normal, my IgG levels though were sky high. So, my GP is like, meh, whatever you don't have anything. After suffering all my life with IBS, I did not like this answer. I want to find out what my problem is! So, I got a second opinion and that doctor said I could have celiac disease, so I'm on a gluten free diet. I'm vegan as well, so I haven't been on dairy and all that for 10 years, so I know that's not the problem.

So, my problem is that on this gluten free diet, my isomnia has gotten 10x worse. My doctor (the 2nd opinion one) says it's my cortisol levels, they're all out of whack. Like, they're high during the night and low during the day. Does anybody know a way to naturally lower them during the night and raise them during the day? I can't fall asleep till after 4am and I'm constantly tired. I do suffer from fatigue (due to the IBS) so, I get B12 shots, but they don't seem to be helping.

So, if anyone has any suggestions on the cortisol/fatigue issue that'd be great.

Also, to Celiacs, what did your blood tests say? I want to get a colonoscopy done to make sure. (I got diagnosed with IBS without it, they did some stomach endoscopes and intestinal x-rays instead). The blood test cost over $200, and I don't want to pay the money for a biopsy. I can't afford it. :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eleep Enthusiast
eleep
Posted

I don't know about how to deal with a reversal of cortisol patterns, but I do know that regular exercise (especially aerobic exercise) can help to manage high cortisol levels. Basically, anything that's good for dealing with anxiety -- meditation, exercise, etc.... will help regulate cortisol levels. Maybe this will also help you to reset your natural rhythms.

ruthellen Newbie
ruthellen
Posted
Hello everyone!

I'm new to the boards, I found this site yesterday when I was looking for a good recipe for gluten free gnocchi. Yum yum.

So, I was diagnosed with gluten intolerance less than a month ago. (well, actually not really.) I forced my GP to give me a blood test for celiac disease, the test results... well. Both my IgA levels were normal, my IgG levels though were sky high. So, my GP is like, meh, whatever you don't have anything. After suffering all my life with IBS, I did not like this answer. I want to find out what my problem is! So, I got a second opinion and that doctor said I could have celiac disease, so I'm on a gluten free diet. I'm vegan as well, so I haven't been on dairy and all that for 10 years, so I know that's not the problem.

So, my problem is that on this gluten free diet, my isomnia has gotten 10x worse. My doctor (the 2nd opinion one) says it's my cortisol levels, they're all out of whack. Like, they're high during the night and low during the day. Does anybody know a way to naturally lower them during the night and raise them during the day? I can't fall asleep till after 4am and I'm constantly tired. I do suffer from fatigue (due to the IBS) so, I get B12 shots, but they don't seem to be helping.

So, if anyone has any suggestions on the cortisol/fatigue issue that'd be great.

Also, to Celiacs, what did your blood tests say? I want to get a colonoscopy done to make sure. (I got diagnosed with IBS without it, they did some stomach endoscopes and intestinal x-rays instead). The blood test cost over $200, and I don't want to pay the money for a biopsy. I can't afford it. :P

You may want to read up on folic acid for the control of your cortisol level.

Also you mention getting a colonoscopy to check the celiac disease diagnosis; actually they can't tell doing a biopsy that way only going through the mouth and stomach (encoscopy) and doing a biopsy in the intestines that way

ruth

Hello everyone!

I'm new to the boards, I found this site yesterday when I was looking for a good recipe for gluten free gnocchi. Yum yum.

So, I was diagnosed with gluten intolerance less than a month ago. (well, actually not really.) I forced my GP to give me a blood test for celiac disease, the test results... well. Both my IgA levels were normal, my IgG levels though were sky high. So, my GP is like, meh, whatever you don't have anything. After suffering all my life with IBS, I did not like this answer. I want to find out what my problem is! So, I got a second opinion and that doctor said I could have celiac disease, so I'm on a gluten free diet. I'm vegan as well, so I haven't been on dairy and all that for 10 years, so I know that's not the problem.

So, my problem is that on this gluten free diet, my isomnia has gotten 10x worse. My doctor (the 2nd opinion one) says it's my cortisol levels, they're all out of whack. Like, they're high during the night and low during the day. Does anybody know a way to naturally lower them during the night and raise them during the day? I can't fall asleep till after 4am and I'm constantly tired. I do suffer from fatigue (due to the IBS) so, I get B12 shots, but they don't seem to be helping.

So, if anyone has any suggestions on the cortisol/fatigue issue that'd be great.

Also, to Celiacs, what did your blood tests say? I want to get a colonoscopy done to make sure. (I got diagnosed with IBS without it, they did some stomach endoscopes and intestinal x-rays instead). The blood test cost over $200, and I don't want to pay the money for a biopsy. I can't afford it. :P

Modism Newbie
Modism
Posted
  • Author

Thanks for the replies.

Yes, I guess I should look more into the B vitamins, I suppose getting B12 shots isn't always enough. If I was low on B12 levels it could be very well possible that I'm deficient for folic acid as well.

And to ruth, I don't really understand your response about the colonoscopy... can you please explain further?

tiredofdoctors Enthusiast
tiredofdoctors
Posted

I have HORRIBLE insomnia. Especially since going gluten-free, too. I hadn't really thought about it until I read your thread. In the past, I've had low DHEA and high cortisol levels (they have a converse relationship) -- and had to have B12 injections -- didn't think about the cortisol issue. Think I will ask my endocrinologist about testing for those -- I'm having a bunch of bloodwork done next visit anyway, why not a little more???? Lynne

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

      @Trish G, I like dates, they have lots if fiber as well. But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small...
    2. knitty kitty
      - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines. Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured...
    3. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement. Thanks again
    4. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      If you were wondering why milk protein bothers you with Celiac Disease. Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
    5. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      My TMJ ended when I lost a middle lower molar. I had an amalgam filling from youth (1960s) that failed and the tooth broke. I had what was left pulled and did not bother to replace it. My bite shifted and the TMJ went away. I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,344
    • Most Online (within 30 mins)
      7,748
    GFBB95
    Newest Member
    GFBB95
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Fiber Supplement

      By knitty kitty · Posted

      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

      By knitty kitty · Posted

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      My TMJ ended when I lost a middle lower molar.  I had an amalgam filling from youth (1960s) that failed and the tooth broke.  I had what was left pulled and did not bother to replace it.  My bite shifted and the TMJ went away.  I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.