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Could this all add up to celiac?

worried96
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worried96 Newbie
worried96
Posted

Hi all,

I'm a 24 year old male living in the UK. Truth be told I've been having a terrible time of things for a few years. It all started out with some chest pain for which I went to ED, I was told there was nothing wrong etc. The chest pain continued and branched out into other symptoms, arm/leg aches, jaw pain, headaches, stomach aches, lightheadedness, and most of all palpitations which really scare me. 

I've been investigated thoroughly by cardiology with a number of tests (holters, echo's, CT's etc) and they've assured me my heart is structurally and electronically normal. I've also been investigated by gastroenterology, a barium swallow diagnosed some moderate acid reflux but nothing more. My bloods (other than raised liver enzymes) have always been largely normal. 

I just can't get to the bottom of my symptoms and I've been looking for an overall diagnosis that would explain such a variety. I came across Celiac disease a few days ago and have done some reading, several of my symptoms seem to match up, particularly the headaches, reflux and maybe the palpitations? (Palps are my main point of worry and distress and they land me in my GP surgery or ED far too much). I have noticed that my symptoms can be worse following a big meal and when lying down, my diet has been a bit gluten/starch based - I am going to trial cutting this out.

Has anyone else had a similar experience to me?

Thanks so much.

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Schnauzer2020 Newbie
Schnauzer2020
Posted

You may have Histamine Intolerance.  I would suggest reading up on the topic.  Hope this helps you.

Scott Adams Grand Master
Scott Adams
Posted

I too had panic attacks and what I thought were heart symptoms before my diagnosis. There are heart issues associated with celiac disease:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/heart-failure-and-celiac-disease/

but to me, since you've been examined and have a normally functioning heart, it seems like there could be other causes.

knitty kitty Grand Master
knitty kitty
Posted

Thiamine deficiency can cause many of the symptoms you've described.  Palpitations, headaches, POTS (Postural orthostatic tachycardia syndrome), lightheadedness, muscle aches (especially tender or sore calves), acid reflux, elevated liver enzymes.  

 Have your doctor test your thiamine level.

Doctors don't usually think of thiamine deficiency unless you're an alcoholic, but a high carbohydrate--empty calorie diet can cause it as well as malabsorption caused by Celiac Disease.  

Do have your thiamine level checked soon!

 

 

 

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