Accidental Glutening-but Getting Better

[averyevansmom]

Well, it's been a little over 4 weeks since going gluten-free. My son has had so many normal BM's I've lost count. So I guess despite what the first GI said, this is actual confirmation of my suspision all along. Yes, no? Sometimes these know-it-all doctors just pi** me off.

We went food shopping at Whole Foods Monday night and one of the free sample foods was a smoked salmon. My son hates fish, however, he loved this so we decided to get him some. Expensive!! After Evan had eaten a couple of small (1")pieces, we realized it had barley malt on the list of ingredients. Today it showed in his poop. All I can say is, it is truly amazing how this disease works. Also amazing is how well, we as parents know when something is wrong with our children. My heart aches at the thought of these doctors brushing off parents whose children are suffering needlessly. I know I cry for my little boy. It hurts to see your child in pain as all of you know full well.

Enough of my sappiness. So is a postive dietary response a diagnostic tool for Celiac? I hope so. Wondering if I should do the Enterolab test, since my bloodwork is normal and I'm the only other family member who seems to have some positive changes from the diet. Any thoughts?

Becky

[Becky6]

It is enough for me! I did not want to do the biopsy and my daughter is 100% better now off of gluten. And we have had a few slip ups as well resulting the same way you saw. I called and gave her GI an update and they said they would note her chart that the response to a gluten-free diet was beneficial. So, honestly to me the diagnosis is not a big deal but that both of us have had postive responses to the diet.

[natalie]

Hi

I understand how you feel. My 3 year old daughter has been gluten free for 3 months now. The other day at daycare she ate a piece of garlic toast ( the teacher's back was turned ). She threw up the whole evening and night. It is frustrating.

Regards,

Natalie