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My symptoms-does this sound like celiac?


Meanbrain

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Meanbrain Newbie

So, I am diagnosed with ADHD and have been since I was a child. I’ve always had UTI issues and constipation issues but doctors could never give me an answer as to why. I was also diagnosed with seborrheic dermatitis two years ago but am skeptical of the diagnosis because I have yet to get any relief from it (on my scalp) 
 

I also experience the following:

-cold hands and feet/turn purple 

-easy to bruise

- fatigue

- loose stools/stools that stick to the toilet? 
- swelling of fingers and pain in finger joints

- light headed when standing up

- my routine blood test from 6 months ago detected high bilirubin levels—stayed high for another few months and returned to normal, so my doctor never sent me for further testing

- I get these tiny painful bumps on my fingers from time to time. They are just barely there but they sting when pressed on

 

 

 

 

 


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Scott Adams Grand Master

Have you ever asked your doctor to do a celiac disease blood panel? Your symptoms could certainly be caused by issues with gluten, so it would be worth getting tested. Note that you need to be eating gluten daily for 4-6 weeks before any tests, so you may not want to go gluten-free until all tests are completed.

Here is more info on the blood tests:

 

Meanbrain Newbie

I have an appointment next week. I plan to ask about it then! 

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  • Posts

    • Scott Adams
      Thanks for sharing this! One of our long time authors share this one a few years back, but I haven't tried it:  
    • knitty kitty
      Welcome to the forum! Keep in mind that if you quit eating gluten before all testing is done, you may have inaccurate, possibly false negative, test results.  When you stop eating gluten, your body stops making the antibodies which are measured in the blood tests.  Stopping gluten before an endoscopy may make the intestinal damage harder to detect, and a false negative biopsy may result.  As uncomfortable as it is, finish all testing before going gluten free.  
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Your feelings are completely valid, and I want to commend you for advocating for yourself despite the initial resistance from your doctor. Navigating a new celiac diagnosis can feel overwhelming, especially when you're adjusting to such a big lifestyle change. It’s natural to grieve the loss of your old eating habits and to feel frustrated by the constant label-reading and vigilance required. But please know that you are not alone, and many others have walked this path and come out stronger on the other side. Healing takes time, and while the brain fog, fatigue, and bowel symptoms can be discouraging, they often improve as your body begins to recover. It’s great that you’ve hired a dietitian—that’s a big step in supporting your healing journey and ensuring you’re getting the nutrients your body needs to rebuild. Remember, each small step you take is progress, even if it doesn’t feel like it right now. It’s okay to feel sad and angry, but also try to give yourself credit for your strength in facing this. The fact that you pushed for answers shows how resilient you are. While the road ahead may have challenges, many people find that over time, they feel better than they ever imagined possible once their gut begins to heal. You’ve got this, and the celiac community is here to support you every step of the way. If you have time, this book was published on Celiac.com's and you might find it helpful: Also, this article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • trents
      Welcome to the forum, @Whyz! By "half way to being diagnosed" I assume you mean you have had the blood antibody testing done but not the gastroscopy with biopsy. Is this correct? Were the results of your blood work positive for celiac disease?
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