Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gerd/heartburn


Guest cassidy

Recommended Posts

Guest cassidy

I have had reflux my entire life. I had surgery for it when I was 11 and I was fine until last year. My first surgery has come undone and I'm considering having a second one.

I know gerd and celiac can be related. I have only been gluten-free for about 2 months. I feel much better, but my gerd is not going away. I realize it takes a while to heal so I'm wondering if my gerd will go away over time. If anyone had gerd before being gluten-free and it went away when they went on the diet, how long did it take for the heartburn to get better? Was it your last symptom to go away, or did it stop as soon as your other symptoms?

If I don't have the surgery by March 15th, then it will be the end of August before I can do it. We have weddings, family vacations and work trips scheduled until then. This wouldn't be a problem except we want to start trying to get pregnant. I'm taking too much medication now, and unless this changes because of the surgery or the gerd going away, we can't try.

I really feel a lot of pressure to get this taken care of now, but I don't want to rush into anything.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

I can't remember specifics, but I think it went away primarily by the third month... but I still had intermittent problems with it depending on what I ate. There may be something else in your diet that is currently aggravating the reflux. Like dairy? or citrus? You may want to look into what you are eating and see if there is a pattern...

Also, if you had it for a really long time it's not going to go away overnight. Your body is amazing in it's ablility to heal itself, but you have to give it time and treat it right!

I don't know what your typical diet is like, but if you are not stickiing to a diet of naturally gluten free foods, and eating a lot of the gluten-free substitute products, those may be aggravating your condition as well, processed foods are harder to digest. Also raw vegetables are harder to digest, Just trying to think of ideas here... trying to remember what aggravates my reflux and sets it off again...

covsooze Enthusiast
I can't remember specifics, but I think it went away primarily by the third month... but I still had intermittent problems with it depending on what I ate. There may be something else in your diet that is currently aggravating the reflux. Like dairy? or citrus? You may want to look into what you are eating and see if there is a pattern...

Also, if you had it for a really long time it's not going to go away overnight. Your body is amazing in it's ablility to heal itself, but you have to give it time and treat it right!

I don't know what your typical diet is like, but if you are not stickiing to a diet of naturally gluten free foods, and eating a lot of the gluten-free substitute products, those may be aggravating your condition as well, processed foods are harder to digest. Also raw vegetables are harder to digest, Just trying to think of ideas here... trying to remember what aggravates my reflux and sets it off again...

I'm only in my second month of being gluten-free, but have noticed a significant improvement with the GERD. Strangely, I had no problems at all with it in the first couple of weeks, and then it came back. I think my body was thinking - hooray, no more gluten! and then figured, yeah, but there's still all these other foods to contend with, so now I'm figuring out what they are. So far for me: dairy, tomatoes, rice, tea, fatty foods and spicey foods. I think there's bound to be more before it gets better. I agree with Nini about the naturally gluten-free foods - my GERD is definitely worse when I eat gluten-free processed stuff.

HTH

Susie

tiffjake Enthusiast

Mine went away almost right away. I don't know if that helps you, but maybe hearing different things from different people will give you some insight. I only have it now when I eat gluten. When I do get GERD I kinda throw-up in my mouth, so it was pretty bad. But it has almost completely (sp?) gone away for me.

Guest BERNESES

I've been gluten-free for a year and I still have to take Nexium for my GERD. I was diagnosed with it when I was 18 so I had it for about 20 years before going gluten-free. When they did my biopsy for Celiac's, they also biopsied my esophagus and it was pretty damaged (pre-Barrett's esophagus which is like pre-pre-cancerous) so they will be watching mine carefully. I'm choosing to stay on the Nexium (I had previously been on prescription Zantac) because of the extent of the damage. Esophagus cancer is NOT something I want (obviously) because it has a very, very poor prognosis.

But you may heal. You had surgery when you were 11? Just wondering how old you are now if you don't mind answering. maybe I just had it too long.

Guest cassidy

I'm 28 now. If my gerd gets to the point where I'm taking my aciphex once a day, then that is pregnancy class b, and you are technically allowed to take it. I'm taking the medicine twice a day now. I've tried cutting back and it does't go well.

Guest BERNESES

Yeah- I will continue to take it too even though we're trying to conceive. I've never heard of any specific risks associated with it (although I know there are risks inherent in anything you put in your body!). I just figure I'm better off taking something that prevents it and heals my esophagus as it's so damaged.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest cassidy

Berneses - Nexium is pregnancy class b, so you can take it. It is recommended that you do not breast feed when you are on any PPIs. My concern is the twice a day dose I'm on now, since the maximum daily dose is once a day. I agree that I hate taking medicine, but sometimes it is necessary, I just think twice the maximum dose is a risk I'm not willing to take for long.

Guest BERNESES

I don't blame you at all! i've heard that pregnancy exacerbates reflux too- not looking forward to that. Have you decided what you're going to do? I wish you the best with whatever you decide. Beverly

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,934
    • Most Online (within 30 mins)
      7,748

    Kazwal
    Newest Member
    Kazwal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.