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Gluten-free Newbie

Linda352

By Linda352
in Introduce Yourself / Share Stuff

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Linda352 Rookie
Linda352
Posted

Hi! I just discovered this site and am hoping to learn a lot from all of you. Although I haven't been tested for gluten Intolerance I am discovering on my own that I am better off physically if I stay away from these particular foods. I am 54yrs of age and have been suffering with degenerative disc disease in my upper spine (neck/shoulder) for many years. I've been in chronic pain until last summer when I began the South Beach Diet. During the 2 weeks that I did Phase 1 of the diet I suddenly was no longer in any pain! I was amazed! Then when I started Phase 2, which obviously, was adding back some gluten contained foods, my pain began once again. Up until recently it's been difficult for me to figure out what contained gluten and what didn't. I have no plan to get tested as I have lost faith in the medical profession and figure I am better off just taking my problem into my own hands and doing what I feel works rather than taking a bunch of prescription pain meds which don't work well to begin with. I've recently been to my local library where I found some useful information along with some interesting cookbooks. If any of you have a good gluten-free cookbook that you really like I would appreciate knowing about it. Looking forward to chatting here with you all :)

Linda from NJ

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tarnalberry Community Regular
tarnalberry
Posted

Welcome to the board. I'm glad you've found something that makes you feel better. You'll find a lot of useful advice - and recipes ;-) - on the board.

  • 2 weeks later...
mamaw Community Regular
mamaw
Posted

Hi Linda

welcome to the group. You will find and learn probably more than you ever wanted to know from this group.I am ever so grateful to find this group as I have learned tons of info. Smart group --- brighter than most doctors regarding celiacs!!!

I'm from Pa and just a tad older than you!!!!!

good luck

mamaw

hungryforlife Apprentice
hungryforlife
Posted

Hi Linda,

Welcome. I just joined recently too, after finding out my brother had celiac's and discussing similarities in our symtoms, I went searching for answers my doctor wasn't able to provide, that is how I found this forum. I am in the process of being tested, and will then have my son tested as well. After that, we will all go gluten free as well, regardless. (I went gluten free for a week and started to feel a world of difference - I suffer from arthritis in my back as well, two lumbar vertibrea have already calcified - and I am only 41 :o )

You will find lots and lots of encouragement here, as well as a whole group of people who know exactly how you feel!

Linda352 Rookie
Linda352
Posted
  • Author

:DThank you all for your kind words and gracious welcome. It's so great to be able to correspond with others who have similar problems and have been gluten free for a while. Hopefully through these forums I may be able to keep a positive outlook on life :unsure:

Thanks again............Linda/NJ

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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