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Newly developed lactose intolerance

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I have had celiac disease for 18 years, diagnosed at the age of 15. There are many other medical issues that Ii deal with too. I have type one diabetes, diagnosed at 14 yrs old, epilepsy (complex partial seizures) diagnosed at 16 years old, and an allergy to polyester at 17 yrs old. I have been following the gluten diet very well and taking care of blood sugar levels 👌. But just this past 6 months I have started to react to lactose. I am not sure if it is due to celiac or to my second brain surgery that was this past October (2019). I show all signs of lactose intolerance. It is not celiac reactions, which was last seen about two months ago and that causes a seizure for me.  

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  • I am sorry that you are unwell.  

I would suspect that your celiac disease was activated two months ago or even earlier causing your lactose intolerance.  When was the last time you have celiac antibodies checked?  Have you had a repeat endoscopy? 

Symptoms for celiac disease can ebb and flow.  They can change too like a chameleon making it hard to determine active disease based on how you feel.  

It is possible that as you age, you can develop a lactose intolerance like any other non-celiac who is genetically predisposed to lactose intolerance.  My best guess would be that your celiac disease is active.  Get retested.  It will at least rule in or help rule out active celiac disease.  

Edited by cyclinglady

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Celiac.com - Celiac Disease Board Moderator

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