Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly developed lactose intolerance


Cassied0174

Recommended Posts

Cassied0174 Newbie

I have had celiac disease for 18 years, diagnosed at the age of 15. There are many other medical issues that Ii deal with too. I have type one diabetes, diagnosed at 14 yrs old, epilepsy (complex partial seizures) diagnosed at 16 years old, and an allergy to polyester at 17 yrs old. I have been following the gluten diet very well and taking care of blood sugar levels 👌. But just this past 6 months I have started to react to lactose. I am not sure if it is due to celiac or to my second brain surgery that was this past October (2019). I show all signs of lactose intolerance. It is not celiac reactions, which was last seen about two months ago and that causes a seizure for me.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
(edited)
  • I am sorry that you are unwell.  
     

I would suspect that your celiac disease was activated two months ago or even earlier causing your lactose intolerance.  When was the last time you have celiac antibodies checked?  Have you had a repeat endoscopy? 

Symptoms for celiac disease can ebb and flow.  They can change too like a chameleon making it hard to determine active disease based on how you feel.  

It is possible that as you age, you can develop a lactose intolerance like any other non-celiac who is genetically predisposed to lactose intolerance.  My best guess would be that your celiac disease is active.  Get retested.  It will at least rule in or help rule out active celiac disease.  

Edited by cyclinglady

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to MagsM's topic in Related Issues & Disorders
      21

      Inflammation and Menier’s disease link?

    2. - knitty kitty replied to MagsM's topic in Related Issues & Disorders
      21

      Inflammation and Menier’s disease link?

    3. - nataliallano posted a topic in Related Issues & Disorders
      0

      Meniers and celiac are they related

    4. - nataliallano replied to MagsM's topic in Related Issues & Disorders
      21

      Inflammation and Menier’s disease link?

    5. - knitty kitty replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      TTG IgA and IGA elevated mildy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,223
    • Most Online (within 30 mins)
      7,748

    nataliallano
    Newest Member
    nataliallano
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @nataliallano, Have you been tested for Celiac Disease before going gluten free?   You may want to continue with a diet containing gluten until all testing us done.  At least get a genetic test to see if you have any of the common genes needed to develop Celiac Disease.   Do you have any gastrointestinal symptoms?  Some people don't, but they do have symptoms outside of the gastrointestinal tract, like Hashimoto's thyroiditis and Meniere's. 
    • knitty kitty
      @MagsM, Try Elliott Overton's site in England... He has a lot of information on his site about Alzheimer's and thiamine and sells TTFD as Thiamax.  (Good stuff!) https://www.eonutrition.co.uk/
    • nataliallano
      Hi all, I was recently diagnose with menier's after a long year of vertigo, ear pressure, tinnitus and anemia. I went to several specialist in The USA and also in Mex. got all the hearing test and MRI but they cant find much. I started a low sodium diet no caffeine no alcohol, and gluten free. I feel no changes in my symptoms. I have tried 6 months o betahistine and diuretics didn't work. Now I'm completely gluten free and  i have some days better than others but nothing seems to work. I don't feel me.  What else can I do? There is something else I could check like vitamins I'm currently taking Ginkgo Biloba as a supplement. how can I find out why Menier's?
    • nataliallano
      Hi I just recently had being diagnose with Meniers after a long year of vertigo, brain fog, ear pressure, tinnitus and anemia. I went to several doctors in USA and Mexico. Did all the test for my ear/ brain, MRI and nothing comes up. The last doctor gave me a combo with betahistine a diuretic and an anticonvulsive. I almost past out.  Nothing seems to calm my symptoms. I started a gluten free diet and I have some days better than others but I'm completely lost. I don't know where to go next.  What should I do next? 
    • knitty kitty
      It's not allergies.   Segments of the protein in corn, yeast, and dairy resemble segments if the protein gluten.  Our antibodies get triggered on the segments no matter where they are from.  Then the antibodies get really confused and attack our own cells which have segments resembling the  protein gluten in the cell membrane.  Hence, Celiac is an autoimmune disease. Did you have a test for Thyroid Stimulating Hormone (TSH)?   Symptoms of hypothyroidism can be very subtle in the early stages.  
×
×
  • Create New...