Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question For Travelthomas


YankeeDB

Recommended Posts

YankeeDB Contributor

Hi TT, I have enjoyed your many informative posts throughout the site. You have certainly had an interesting life and I envy your extensive travel experiences.

What I was wondering about specifically is how you handle explaining to hotels/motels why are you cooking in your room?

Also, aside from the multi-fuel stove you mentioned, do you like any of the portable electrical devices such as the George Foreman grills or hot plates or electric griddles?

What are the tricks and tips for cleaning cookware in a hotel room? Do you take your own dishes, use throwaways, eat out of the pan, or....?

I suspect for a while my own travel will be limited to the USA and so would like to know how I could be minimalist in my luggage yet able to prepare good food in my room. I suppose I could always stipulate a refrigerator though not necessarily a microwave.

Thanks for your thoughts! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



plantime Contributor

Hi, Yankee. I know I'm not Thomas, but I suggest that if you are going to travel in the continental US, try driving instead of flying. You can store your cooking gear in the trunk, and tailgate cook if you need to. I would use disposable dishes whenever possible, simply because I hate washing dishes! The sinks in hotels are rarely large enough!

tarnalberry Community Regular

Another consideration is that a lot of areas have residence-inn type places that have kitchens (with fridges) in the rooms. Very convenient!

  • 2 weeks later...
celiac3270 Collaborator

I, too, am certainly not "TravelThomas", but when I went skiing, I never ate out. Recently diagnosed, and having been plagued with symptoms for years, I didn't trust the restaurants. As for telling the hotel.......if you clean up well enough and put your cooking gear in a suitcase or bag when maid service comes, you don't have to. :)

Obviously, having a small fridge in the room is helpful...if not, a cooler filled with ice can substitute. I agree with plantime in that I'd recommend driving. I find disposable plates to be best; you don't need to store them, and you can buy them at your destination. I brought a toaster oven and a George Foreman grill. The toaster oven allows you to eat toasted bagels or breads for breakfast, and you can cook potatoes, or whatever else, in it for dinner. The Foreman, obviously is helpful to add meat to your diet. My family has a larger one, which we brought on vacation, but I've seen smaller ones in various bright colors, that might be more suitable for travel. I don't have much to say...I've only gone on vacation on the gluten-free diet once...My ramblings probably had no useful information, but I hope there's something in there that's of use......

YankeeDB Contributor

Thank you everyone for your excellent suggestions! I'm definitely going to invest in an electric grill the next time I travel. celiac3270, how easy is the one you have to clean?

  • 1 month later...
celiac3270 Collaborator

To wash it....you just need to have it over a sink and sponge down the grilling part.....it can get slightly messy, but it's not particularly difficult...and if you just clean up after yourself, the hotel doesn't have to know ;)

-celiac3270

travelthomas Apprentice

Hi YankeeDB,

About cooking in the room; some are understand and some do not. The ones who do not make me cook outside (and they just tolerate that). I do not like to be deceitful, but I have to agree with celiac3270. What the hotel owners don


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator
For plane travel I take as much of my own food as possible, and on the real long air trips I take my chances with the airplane food (being real careful to avoid gluten). From what I hear they are starting to eliminate meals on flights, so it will not seem that strange if you bring meals with you.

My dad, who travels A LOT (mostly to Europe and around US, though...sometimes to Singapore or Hong Kong, but not usually). Since I was diagnosed he's more aware about celiac disease, obviously, and he's heard people asking for their gluten-free meals.....they must be relatively accomodating on planes, then.....just a thought ;)

-celiac3270

Thomas Apprentice

some airlines have gluten-free food choices

  • 2 weeks later...
dianne Rookie

Yankee, Just wanted to put my two cents in. Did you know there are meals, which come in a resealable pouch, which only need boiling water to be added? I get them online, through Gluten Solutions. They have them listed under the brand, Gluten Free Cafe. Happy traveling! :rolleyes:

Dianne

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,898
    • Most Online (within 30 mins)
      7,748

    MLucia
    Newest Member
    MLucia
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.