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Glutening Episode Recovery Time?

jthomas88

By jthomas88
in Coping with Celiac Disease

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jthomas88 Newbie
jthomas88
Posted

My daughter (17) was diagnosed with gluten intolerance about 2 months ago, after 4 years of health issues probably all stemming from NCGS/other food intolerances/malabsorption (but no D). She's been very good (except for one slip-up) about keeping away from all known gluten. She has, however, had two or three "spells" where she feels good for three or four days, then is so sick (fatigue, ache, dizziness/faintness) that she misses school for the next two and a half to three weeks. I could force her to go each day, but I'd almost literally have to stay with her all day, propping her up and carrying her from class to class (and I'd have to quit my job to do so, so that's not really an option.)

In most of the posts I've read here, people have two or three bad stay-at-home type days and then can (happily or unhappily) resume their normal schedule. Are there others who take 2-3 weeks to become functional humans again?

We're waiting on the results from the ImmunoLabs' BloodPrint1 food intolerance test, but that won't be back for at least another week - and Mommy needs to be patted on the shoulder and told "There, there, dear. It'll be okay eventually." :(

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Posted

It got better for me the further I got into the diet because I was getting glutened less. now, generally speaking, unless I really mess up, I get glutened mostly by cross-contamination (like eating out etc) and that for me is usually one hard day down. I'm a teacher so Ii caan usually still make it out of the house and go to work.

If I actually get glutened (not just trace amounts but actually eat something with gluten in it) it's about a week. I could not go to school for probably the first three days.

I think as your gut heals and you get better at the LIFESTYLE, not just the diet, you will find that it happens less and less often. Hope that iss the pat on the shoulder you needed. ((Hugs))), beverly

hez Enthusiast
hez
Posted

I am so sorry that your daughter is not feeling great. For me it takes about a month to be back to normal after being glutened. I am a mother of two small kids so even if I am sick there is no down time. I take immodium i-d and keep going. It did take me a long time (6-7 months) after getting my dx before I started to feel better. Have you considered or thought about if depression is playing a role in her not wanting to leave the house? Just a thought. I know that I went thru some depressed times during my teenage years and I did not even have this disease then. Please come to the board if you are feeling overwhelmed and need some support. This is a great group of people who are here to help others. Pat on the back from me :)

Hez

jerseyangel Proficient
jerseyangel
Posted

Hi--Sorry you daughter is having such a hard time. When I have a gluten reaction, I will have D from about 2 hours after I ingest the gluten (always thru CC, never on purpose) to about 3-5 days later. During that time, I also have nausea and lightheadness. I would only actually be "down" for those 3-5 days, although I don't feel normal for 2 weeks. I had another thought reading your post--has your daughter been tested for anemia? I was severely anemic for years--her reaction sounds familiar. The good news is that after 6 months on the gluten-free diet, my anemia cleared for the first time in years.

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