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Went To New Gastro

whitelacegal

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whitelacegal Contributor
whitelacegal
Posted

After 1 month of being with a gastro doctor who wont help me out i decided to go to someone else, this new gastro order blood test for Celiac, but i was diagnosed 1 month ago by biopsy and am on the gluten free diet, will the blood tests show if i have been not eating any wheat products? I have bad diarrhea even after being gluetin free for 1 month and losing alot of weight, how can i keep my weight steadyor not lose anymore, im eating alot but nothing stays in my body.

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Guest jhmom
Guest jhmom
Posted

Why would your new Gastro doc run Celiac blood test if you have already been dx through a biopsy?

To answer your question, yes being gluten-free for a month will affect your blood test, they will not be accurate.

I hope you feel better soon!

whitelacegal Contributor
whitelacegal
Posted
  • Author

The old gastro i went to never did run blood test for celiac all they did was the biopsy of the small intestine and colon, i know that dont make sense! I dont know why this new gastro would run this test when i have been on the gluentin free diet for 1 month! makes me mad!

Guest jhmom
Guest jhmom
Posted

If it were me I would have the doc check out the other symptoms you are having and inform him that you are on a gluten-free diet and if you are WILLING or NOT WILLING to go back on gluten to satisfy his needs to test you again.

I would also go to your old Gastro and get a copy of your biopsy results and any other tests he ran and take with you to the new Gastro doc, so that he can see what he been done.

I wish you luck and do hope you feel better soon! Take care :D

lovegrov Collaborator
lovegrov
Posted

I would consider the possibility of bacterial overgrowth, which can give you cleiac-type symptoms. Recent research showed that a large percentage of people who go gluten-free and still have symptoms also have bacterial overgrowth. You can ask your doctor about it but I would just start taking a probiotic like Culturelle. It won't hurt you and it might solve the problem.

PS -- If you try this and it does the trick it does NOT mean you don't have celiac disease. I would say that with positive biopsy you have celiac disease.

richard

whitelacegal Contributor
whitelacegal
Posted
  • Author

I will ask my new gastro about bacterial overgrowth when i go back there in 2 weeks, i allready gave him copies of my biopsy of my small intestine and colon. If i would have bacterial overgrowth of my intestine how would they be able to find this out does anyone know?

lovegrov Collaborator
lovegrov
Posted

Here's froma medical web site. I just did a google search for "bacterial overgrowth +diagnosing" and got lots.

"Identifying the cause of small bowel bacterial overgrowth, and even diagnosing it as the cause of the patient

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    • knitty kitty
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      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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