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Should I Have Gluten Before My Celiacs Blood Test


Syann

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Syann Newbie

Hello!

My name is Syann and I'm new to this network. I'm so happy I found this awesome resource!

I'm wondering if anyone can guide me with the celiac blood test I'm about to take. I've cut out gluten since August, so for about 5-months, because of thyroid issues.

I was about to take a Celiacs blood test around that time as well because of neurological symptoms along with a host of other issues including digestive and vision, but it got postponed, because well it's 2020.

I'm now ready for the blood test, but I'm wondering if I should re-introduce gluten for the test. If I've been gluten free for that long will the test be as accurate?

I've contacted my functional medicine practitioner as well, but I would super appreciate perspective from anyone who would like to share. I'm just starting my gluten-free journey and potential celiacs-diagnosis.

Thanks so much!

Syann

 

 

 


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trents Grand Master

Your testing would not be valid if you have been gluten free for that long. If you are feeling better after eliminating gluten from your diet, however, that may tell you all you need to know. When all is said and done, even if your testing was positive, it all winds up in the same place. That is, eating gluten free. However, if you are one of those people who need to have an official diagnosis in order to stay on track with the gluten-free diet or if you would benefit from an official diagnosis from the standpoint of medical care or insurance.

GFinDC Veteran

Hi Syann,

Trents is right.  You would need to do a gluten challenge to get accurate test results at this point.  that means eating at least some gluten every day for a period of time before the tests.  Your doctor can tell you how much gluten and how long to eat it before testing.  Usually it is a 2 week gluten challenge for the endoscopy and 6 to 12 weeks for the blood antibody testing.  Endoscopy often can take 3 months or more to be scheduled.  So you would want to get the endoscopy date locked in first before planning your gluten challenge.

 

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    • RMJ
      Yes, it would make sense to go mostly gluten free, since it gives your troubles.
    • SMK7
      Yes, I made an effort to eat extra gluten at least 3 weeks before the endoscopy. I probably ate a some amount in the weeks before that. I had diarrhea, which resolved once I cut back after the endoscopy. So I think it would make sense to go mostly gluten free?  
    • RMJ
      Yay for the normal biopsy! Thanks for the follow up. Were you eating gluten prior to the endoscopy?
    • Scott Adams
      I think that with the elevated antibodies found in past tests, and a negative biopsy, you are firmly in the NCGS camp. If symptoms go away on a gluten-free diet it would be confirmation that you should likely stay on the diet.
    • SMK7
      Just to follow up on this, a year later I had endoscopy, the result was mild chronic gastritis, the initial endoscopy looked normal and the biopsy was normal.  
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