Does this sound like a gluten issue?

[angelia]

I have been wondering for years if I need to be gluten free but every time I go to the doctor they tell me no don't do that. I have had a celiac blood test twice (negative... Last time was a few years ago though). I feel so bad at the moment though that it is getting to the point that I don't know what else to do. 

Some of my symptoms over the last 10 years have been:

Hypothyroid diagnosis, bad fluid retention in legs, puffy weight gain (a lot), infertility, miscarriages, hormone issues, skin rashes, muscle pain all over, every day I wake up with a sore back, Low iron, low vitamin d, foggy brain, headaches, stingy eyes, tinnitus, puffy red face sometimes after eating, not sleeping well, anxiety and depression, some hair loss, reflux, liver issues, sugar cravings etc... There are probably more things... 

Maybe it's not celiac or gluten intolerance as the doctors said... Maybe I'm just unlucky haha.... I have both genes 2 and 8. 

I need to know I'm not crazy as I'm starting to worry about not being able to work soon if this continues. I already have such trouble walking that I feel I am no fun anymore. 

I have wanted to ask on this forum for ages but felt like maybe I was just over thinking.

Does it sound like celiac/a gluten issue or am I just on the way out haha 😊

Thank you

[Scott Adams]

So one issue with how celiac disease is diagnosed is that the cut off levels in blood tests that define positive vs. negative results may miss cases of celiac disease. Many in this forum try gluten-free diets for some time before their tests are completed, thus might test negative when they would have tested positive had they eaten gluten daily before the tests. Feel free to share your blood test results if you have them, as they may reveal gluten issues that could at least mean non-celiac gluten sensitivity. 

If you are both DQ2 and DQ8 positive, like I am, it certainly puts you in a higher risk category than just having one of those markers.

To me, the real test would be if your symptoms improve on a gluten-free diet, which would indicate gluten sensitivity (no current tests can confirm NCGS). You certainly have nothing to lose by trying this approach, but be sure your diet is 100% gluten-free. This article might be helpful, and let us know how things go:

 

[angelia]

Thank you for your reply, I really appreciate it. My blood results are unfortunately packed in a box but I will read the link you sent me and go from there. Thank you again 😊