Hoping for an end..

[Soretummy]

Hey everyone! 
 

I have been having a time.. woah. It’s been brutal. 
 

I got severe food poisoning  12 months ago and that’s the best way to describe the stomach twists and turns, cramps and excruciating pain that I often feel normally straight after or shortly within eating.. 

 

I have been in so much pain, always needing to be near a toilet as I have severe diareah and pain at mostly no notice. I went to my doctor and he’s said ‘sounds like IBS’ but I have had IBS for a long time, this is something different. 
 

He is starting to process of testing for Celiac disease now and upon researching it all, this sounds so spot on for me.. all the pain, reactions and even the lactose intolerant part.. 

It seems each day there is another food I can’t stomach. All diary is completely out, even too much almond or oat milk (I now realise that could be the gluten) cause this reaction also.. 

I am 2 years PO gastric sleeve, so my body snd digestion has changed A LOT in this time. 
 

any tips, tricks or advice/ insight from those who have gone through this journey would be so helpful.

 

im hopeful to get some answers and start to be able to live more carefree, not constantly thinking about the nearest bathroom. 
 

 

[trents]

Oats do not contain gluten but have a protein called avenalin which some believe causes a similar reaction in the gut to gluten. About 10% of celiacs react to oats like they do gluten. However, it's not entirely clear whether this is because of cross contamination of the oats with gluten containing grains. There is not yet definitive research available to sort this out.

But please here this. Do not attempt to reduce your gluten consumption before you get all testing done for celiac disease. There are blood antibody tests (first stage of diagnosis) and this can be followed up by and endoscopy/biopsy which is the second stage of diagnosis and considered to be the gold standard. However, if the antibody values are high, many physicians forego the endoscopy/biopsy and diagnose on the antibody values alone. But you must still be on regular amounts of gluten daily before either test. Many physicians are ignorant of this or forget to explain this to their patients. Cutting down on gluten before the tests will allow the body to heal and recover and will invalidate either kind of test. So continue to eat one to two slices of wheat bread (or the equivalent) for at least two months before the blood antibody test and at least two weeks before the endoscopy/biopsy, should that be ordered.

Edited June 29, 2021 by trents

[Soretummy]

4 minutes ago, trents said:

Oats do not contain gluten but have a protein called avenalin which some believe causes a similar reaction in the gut to gluten. About 10% of celiacs react to oats like they do gluten. However, it's not entirely clear whether this is because of cross contamination of the oats with gluten containing grains. There is not yet definitive research available to sort this out.

But please here this. Do not attempt to reduce your gluten consumption before you get all testing done for celiac disease. There are blood antibody tests (first stage of diagnosis) and this can be followed up by and endoscopy/biopsy which is the second stage of diagnosis and considered to be the gold standard. However, if the antibody values are high, many physicians forego the endoscopy/biopsy and diagnose on the antibody values alone. But you must still be on regular amounts of gluten daily before either test. Many physicians are ignorant of this or forget to explain this to their patients. Cutting down on gluten before the tests will allow the body to heal and recover and will invalidate either kind of test.

Thank you for all of that. 

As much as I want to, I understand the importance of having the gluten there to test effectively, so I won’t cut down until the testing is completed and I am given results. 

 

I appreciate your assistance!

[Scott Adams]

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