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Help with testing

Xvd
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Xvd Newbie
Xvd
Posted

Hello! I just recently joined the forum in hopes of finding some help. I have gotten blood work and the endoscopy procedure and tested negative for gluten intolerance. Although cutting gluten and dairy have made a difference in my lifestyle I’m still have problems. I’m being referred to the gastrology department to request a GI Map to be done. Anything else I should ask for to be tested? 

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trents Grand Master
trents
Posted
17 minutes ago, Xvd said:

Hello! I just recently joined the forum in hopes of finding some help. I have gotten blood work and the endoscopy procedure and tested negative for gluten intolerance. Although cutting gluten and dairy have made a difference in my lifestyle I’m still have problems. I’m being referred to the gastrology department to request a GI Map to be done. Anything else I should ask for to be tested? 

Welcome to the forum, Xvd!

You may be confusing gluten intolerance with celiac disease. Gluten intolerance is an umbrella term made popular by pop science food industry marketing that covers two medical problems associated with gluten consumption: celiac disease and gluten sensitivity (aka, non celiac gluten sensitivity or NCGS for short). Sounds like you have had celiac disease ruled out by testing but you could still have NCGS for which there is currently no test. It is diagnosed by the persistence of symptoms after celiac disease has been ruled out. NCGS does not cause villi damage as does celiac disease but produces many of the same symptoms. 

Scott Adams Grand Master
Scott Adams
Posted

Welcome, can you please clarify what you've posted here? It sounds like you had a celiac disease blood panel, and an endoscopy that looked for celiac disease, and both tests were negative, is this correct? Also, it sounds like you do still have issues with gluten, and if so, that likely puts you in the NCGS category, as @trents mentioned. Please let us know.

  • 3 weeks later...
Xvd Newbie
Xvd
Posted
  • Author
On 9/16/2021 at 10:37 AM, Scott Adams said:

Welcome, can you please clarify what you've posted here? It sounds like you had a celiac disease blood panel, and an endoscopy that looked for celiac disease, and both tests were negative, is this correct? Also, it sounds like you do still have issues with gluten, and if so, that likely puts you in the NCGS category, as @trents mentioned. Please let us know.

Hi! Yes that is correct. I have an appointment soon with the gastrology department and looking to get testing to see if maybe I have leaky gut or maybe overgrowth of a certain bacteria. Any suggestions on panels I can ask to be tested?

Scott Adams Grand Master
Scott Adams
Posted

It's difficult to make a recommendation because we don't really know what tests were done. If you could get a copy of what celiac blood tests were done it would be helpful. Also, were you eating gluten daily until you did those tests? 

Likewise, they did an endoscopy, but if your blood panel for celiac disease is negative they normally would not do this procedure. If they did do it, do you have the results?

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      Accuracy of testing concerns

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    • trents
      Accuracy of testing concerns

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