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Am I really bipolar or just celiac?


Frenzy

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Frenzy Newbie

Storytime. So my whole life I have been diagnosed with some mental health problem or another. Growing up I was the tantrum king, I would go off over absolutely anything. It was so bad that I spent ages 8-17 in homes where I was restrained on a daily basis. Right now my diagnosis is schizo-effective bipolar disorder type 2 with PTSD. Which kind of feels like they are altering labels to fit the symptoms. I have been taking Depikote for 11 years and it has been  helping to reduce symptoms, until now. Now I'm 34 and I was diagnosed with celiac via a endoscopy about a month and a half ago. Now here is the strange part. Since going on a gluten free diet, my mood swings, mania, rage, and fear have all disappeared. But now I'm depressed, like all the time.  I have never had a depression episode last longer than four days, mania was always my problem. This has been going on for about a month now. I checked the side effects of Depikote and this is one of them, though it's one I have never experienced. I googled about it and found that their are studies claiming that bipolar and celiac are linked, they even go so far as to postulate that celiac CAUSES bipolar. So now I'm thinking I was misdiagnosed as bipolar and everything is related to my celiac. I am still taking my meds as I will go through a withdrawal if I stop. I have scheduled an appointment with my doctor but it's a ways out. I'm just wondering if anyone else has experienced this or if it's just another delusion. Sorry if there is another article on here about this, I could not find it. Thank you for your time.


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trents Grand Master

Yes, it is well-known by now that celiac disease is associated with mood disorders. There is probably a strong link to vitamin and mineral deficiencies in this matter as people with celiac disease, because of the damage to the small bowel villi, do not absorb the nutrition from food efficiently. If I were you I would start taking a gluten free high potency multivitamin and a gluten free high potency B-complex. Costco's Nature Made products are good choices in this regard.

knitty kitty Grand Master

@Frenzy,

Welcome to the forum! 

I agree with @trents.  Deficiencies in certain vitamins can cause alterations in brain function. 

Deficiency in Vitamin D can cause depression.  I know from experience.  I was extremely deficient in Vitamin D.  I took D3 and the black cloud over me started to lift rather quickly.  

Deficiencies in other vitamins can contribute to mood liability and PTSD, etc.  Been there, done that, got a t-shirt.  

Don't go off your meds just yet.  Do ask your doctor to test for vitamin and mineral deficiencies.  More than just Vitamin D and B12.   It's proper follow up care for Celiac Disease patients. 

You'll feel better as your deficiencies are corrected by supplementation and you'll be able to come off your meds easily.  

I've got some articles for you....

"Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/#idm140604396876032title

And...

Neurological manifestations, diagnosis, and treatment of celiac disease: A comprehensive review

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3829244/

And...

The Role of Vitamins and Minerals in Psychiatry

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3046018/#!po=10.0000

And...

Adjuvant thiamine improved standard treatment in patients with major depressive disorder: results from a randomized, double-blind, and placebo-controlled clinical trial

https://pubmed.ncbi.nlm.nih.gov/26984349/

And...

Some of my posts about my experience with vitamin deficiencies....

I hope this helps!

We'll be here if you have more questions.  Do keep us posted on your progress! 

 

Scott Adams Grand Master

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    • trents
      Mostly because of the inconsistency/irregularity of your symptoms with regard to gluten consumption and other dietary factors. Their doesn't seem to be a real pattern. Histamines are produced by our bodies themselves but they are also found in the foods we eat and the air we breathe (pollen). Certain foods, for example, fermented and aged products, are very high in histamines. Other foods, like bananas and avocados, may be high in histamines but they also may stimulate the body's production of histamines. The body (in the gut) produces a histamine regulating chemical called DAO (Diamine Oxidase). Some people, and this is more common in the celiac community because of damage to the gut lining, don't produce enough DAO to adequately regulate histamine levels in the body. This results in histamine "storms" that produce a variety of symptoms such as headaches, acid reflux and diarrhea. So, I'm just wondering if your symptoms are tied to fluctuating histamine levels that get pushed passed the tipping point at times by various things you may be eating. Anyway, you might want to research it. I also wonder if you have IBS.
    • xxnonamexx
      Never heard of that but what makes you think that? I checked that but only have 1 symptom diarrhea but may be lactose or fiber increase no other symptom of mcas
    • trents
      Celiacs vary enormously in their sensitivity to cross contamination and I assume the same may be true for those with NCGS. I also wonder if other things going on in our body at any given time can influence whether or not we experience symptoms upon exposure to gluten, especially with reference to minor amounts like you get in cross contamination. We are more sensitive to certain things at some times more than others. But what you describe makes me wonder if you suffer from MCAS (Mast Cell Activation Syndrome)/histamine intolerance. Have you looked into that?
    • xxnonamexx
      I have seen alot of great recipes but when it comes to gluten-free flours its pricy for 3lbs of gluten-free flour. I also noticed increase in sugars in gluten-free products recipes. What have you been using to lower sugar contect and keep costs down in purchasing gluten-free ingredients to bake/cook yourself.
    • xxnonamexx
      It appears when ging out with friends to a restaurant that doesn't have Gluten free menu salads appear the safest bet worst case scenario. I also read CHick Fil a Grilled chicken is gluten free and you can ask for a gluten-free bun.
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