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Jul Grant

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Jul Grant Newbie

Hello everyone, I'm here due to a mixture of symptoms that I simply can't seem to find an answer to, but hopeful someone here may be able to assist me.

My brain is telling me these symptoms may be linked to Gluten (based on my nutrition diary)

3-4 months earlier this year of ongoing D, followed by C

Constant cold feet, sometimes restless leg at night in bed, + cramps in legs/feet

Numbness tingling etc in extremities

Cluster headaches or alarm clock headaches same time each afternoon 

Painful elbows, always gum & teeth problems, high neutrophils historically. 

New possible symptom as I stayed away from all things Gluten for some time - but recently have y'know had a piece of toast (& only noticed heartburn following).

It's almost like I hit a critical mass & then my body reacts to even the smallest amount, ...is that even possible? 

Got glutened yesterday (laziness on my part entirely) 45 mins after eating (& it was just a homemade vegetable soup that also had noodles in it) - this strange 'vice like' grip from the top of my neck to my temples, like something is squeezing my head, along with irritability, lack of concentration, mid chest pain, arms felt heavy, high blood pressure, unable to process speech in or out without irritability. Almost like somewhere between heart attack pain & a panic attack (last 30mins to 45mins) - followed by explosive D after this passed. Wiped out today, tired, lethargic, muscle ache etc.....is it even possibly something to do with Gluten?

Possible heart issue already checked out with no issue. 

Here, because frankly I'm not sure of next steps. Thankyou very much. Jul :) 😕 


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trents Grand Master

Yes, many of your symptoms are common with both celiac disease and NCGS (Non Celiac Gluten Sensitivity).

Your next step is to get tested for celiac disease via celiac antibody testing. 

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

You can also order a home celiac test from Imaware for about $100 if scheduling doctor appointments can't be done in a timely fashion or if doctors are unwilling to order the tests.

You must be eating regular amounts of gluten for 6-8 weeks prior to testing. Regular amounts of gluten being defined as two slices of wheat bread or the equivalent daily.

If you cannot tolerate that, your only resort is to get serious about eating gluten free and educating yourself as to how gluten is hidden in the food supply.

Jul Grant Newbie
  On 11/4/2021 at 12:44 AM, trents said:

Yes, many of your symptoms are common with both celiac disease and NCGS (Non Celiac Gluten Sensitivity).

Your next step is to get tested for celiac disease via celiac antibody testing. 

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

You can also order a home celiac test from Imaware for about $100 if scheduling doctor appointments can't be done in a timely fashion or if doctors are unwilling to order the tests.

You must be eating regular amounts of gluten for 6-8 weeks prior to testing. Regular amounts of gluten being defined as two slices of wheat bread or the equivalent daily.

If you cannot tolerate that, your only resort is to get serious about eating gluten free and educating yourself as to how gluten is hidden in the food supply.

Expand Quote  

Thankyou so much for your response, floundering here & am very grateful to you :) 

trents Grand Master

If you go in for celiac disease testing, I encourage you to request the physician to order a complete celiac panel as described in the link above. Many physicians will only order the tTG-IGA test. The complete panel would include the tests under "Other Tests" in the article I linked above. Please be aware that there is a general lack of knowledge in the medical community about celiac disease and most of the regulars on this forum will tell you that you need to be your own advocate in this matter and be willing to be assertive if you want things to be done that need to be done to get some answers.

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