Tests, results & symptoms..

[Itsame-Gemmy]

Hi all! 
I’m new! 

My GP ordered a coeliac screening test for me back in Aug after experiencing some pretty extreme exhaustion, bowel issues & skin issues (flare ups of eczema that have lasted months). 
Because of the blood bottle shortage, my tests were only done 3wks ago & the results are back. 
 

I spoke with another GP (not the one who ordered the tests) & she said everything was fine, except my coeliac screening was 6. She wouldn’t tell me what the test was, or what it was showing, just that the number was 6, so I’m really sorry that I can’t give any further info. She said the normal range for the test is 0-4, so it’s only barely borderline & therefore I shouldn’t worry as it doesn’t really mean anything & it definitely doesn’t explain my symptoms. Also, I had a coeliac screening years ago & it was fine. 
 

The receptionist told me that my original GP had requested that I repeat the liver enzymes test in 3mo as that was also elevated, but within normal ranges. 
 

I’m not really sure what to make of any of it tbh. I speak to the original GP next week, so hopefully she will give me some more info & send me for more tests to find out what’s going on. Could it be something other than coeliacs to get a result like this? What was the test they ran?! 😅 

[trents]

26 minutes ago, Itsame_Gemmy said:

I spoke with another GP (not the one who ordered the tests) & she said everything was fine, except my coeliac screening was 6. She wouldn’t tell me what the test was, or what it was showing, just that the number was 6, so I’m really sorry that I can’t give any further info. She said the normal range for the test is 0-4, so it’s only barely borderline & therefore I shouldn’t worry as it doesn’t really mean anything & it definitely doesn’t explain my symptoms. Also, I had a coeliac screening years ago & it was fine. 

Wrong!

Edit: First, you have lots of symptoms that are classic for celiac disease. Second, you have a positive antibody test for celiac disease. Or apparently so. You need to find out what that test was. Do you have online access to your medical records? Third, your liver enzymes are trending high, even though still within normal range. About 18% of people with celiac disease have elevated liver enzymes.

This community will tell you that there is woeful ignorance about celiac disease in the medical community. What knowledge there is is often dated. We have learned that to get proper testing done we have to come armed with knowledge and be assertive with doctors.

At minimum, a tTG-IGA blood antibody test should have been done: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

Edited November 17, 2021 by trents