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RASH

Ginger38
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Ginger38 Rising Star
Ginger38
Posted

Does anyone else get rashes in the same places that just randomly come and go?? I keep getting raised bumps and rash like on the back of my upper thigh. I've tried everything it seems but it always comes back

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knitty kitty Grand Master
knitty kitty
Posted

You may be interested in this article about Autoimmune Hives.  

https://www.healthline.com/health/skin/autoimmune-hives

Ginger38 Rising Star
Ginger38
Posted
  • Author
7 hours ago, knitty kitty said:

You may be interested in this article about Autoimmune Hives.  

https://www.healthline.com/health/skin/autoimmune-hives

Thank you, I'm definitely wondering if that's what this is. My feet would actually blister when they would break out, but this is a little different. It is like a cluster that gets worse if I scratch or wear hot clothes or tighter pants. I've  had hives off and on my whole life. These didn't seem like the typical hives, but sounds like autoimmune hives can look differently

Scott Adams Grand Master
Scott Adams
Posted

I had two skin symptoms before I discovered that I had celiac disease, and one was blepharitis (eyelid inflammation and rash), which, after going gluten-free, would flare up if I got any cross-contamination, and dermatitis herpetiformis, which was only in two spot--inside by right ankle, and on the back of my right thumb. The strange thing about the DH was that it never moved around or grew, it was just in two small areas.

DH typically has very tiny clear hard blisters associated with it, and it is extremely itchy, almost like poison oak/ivy itchy. Have you had a dermatologist look at it, as they could do a biopsy for DH.

  • 2 weeks later...
Ginger38 Rising Star
Ginger38
Posted
  • Author
On 11/23/2021 at 7:11 PM, Scott Adams said:

I had two skin symptoms before I discovered that I had celiac disease, and one was blepharitis (eyelid inflammation and rash), which, after going gluten-free, would flare up if I got any cross-contamination, and dermatitis herpetiformis, which was only in two spot--inside by right ankle, and on the back of my right thumb. The strange thing about the DH was that it never moved around or grew, it was just in two small areas.

DH typically has very tiny clear hard blisters associated with it, and it is extremely itchy, almost like poison oak/ivy itchy. Have you had a dermatologist look at it, as they could do a biopsy for DH.

No I haven't had a dermatologist look at it. If I avoid gluten it seems like I don't have any regular issues with it. I will say it was the itchiest stuff ive ever dealt with though. Calamine and hydrocortisone could barely keep the itching down- mine is mainly on the tops of my feet 

Scott Adams Grand Master
Scott Adams
Posted

I've heard that Ben-Gay cream helps, but since I've not had DH issues in many years never tried it myself.

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    • Zuma888
      Hypothetical question about antibodies

      By Zuma888 · Posted

      Thank you so much.
    • knitty kitty
      Hypothetical question about antibodies

      By knitty kitty · Posted

      You have one gene for Celiac.  You have a second autoimmune disease, Hashimoto's thyroiditis, which is frequently found at a higher rate with Celiac.  HLA genes carry autoimmune disease genes like Celiac and Hashimoto's and diabetes and others.   You have Celiac symptoms of reacting after gluten.  You said "I am however still suffering from the effects of the gluten challenge (food sensitivities, slight brain fog, weird stool, fatigue, swollen thyroid, bodyaches)."  And your anti-thyroid antibodies increase after gluten exposure.  While tTg IgA does not directly attack the thyroid, gluten exposure does trigger the  immune system to produce antibodies against the thyroid in genetically predisposed individuals.  You did not eat sufficient gluten (10 grams of gluten per day for two weeks minimum) to raise the autoimmune antibodies to the point they can be measured in the blood, so your blood tests may well be inaccurate.  You could choose to continue the gluten challenge of 10 grams a day for at least two weeks and get retested.   At the very least, you know that gluten is harmful to your thyroid, and because you are genetically predisposed to Celiac disease, a strict gluten free diet would be beneficial for your overall health.  
    • Zuma888
      Hypothetical question about antibodies

      By Zuma888 · Posted

      Thanks @Scott Adams! I guess my question now is: do the celiacs who can get away with regular contamination without villi damage as you mentioned have to be strict about cross-contamination ? 
    • Zuma888
      Hypothetical question about antibodies

      By Zuma888 · Posted

      Thank you very much @knitty kitty! I'm glad you brought up the point about histamine. I have been taking an antihistamine after meals where I don't feel so good and never knew why it helped so much. At first I thought I might have a food allergy, but I recently did a food allergy test and I actually have ZERO food allergies. Regarding your last point about the stages of grief, are you saying it's likely that I have celiac? I have Hashimoto's BTW and I know for sure that gluten causes an autoimmune response to my thyroid as my anti-TPO and anti-Tg go up and my throat feels swollen. Could the symptoms be due to that autoimmune response?
    • knitty kitty
      Hypothetical question about antibodies

      By knitty kitty · Posted

      @Zuma888, The antibodies produced in response to gluten are made in the intestines.  When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream.  Once in the blood stream, the antibodies can be measured with tTg IgA tests.  Three grams of gluten per day for two weeks minimum is enough gluten to make you feel the symptoms of having been glutened, but the antibodies are not in sufficient quantity to be measured in the blood. Ten grams of gluten per day for a minimum of two weeks is required to get the anti gluten antibodies at a high enough level in the blood stream to be measured by tTg IgA tests. So, no, occasional cross contamination or (heaven forbid) intentional cheat days will not be sufficient for tTg IgA testing.  You will still be making antibodies which will still be causing inflammation and damage to the intestines and body.  Histamine is released as part of the immune response to gluten.  High histamine levels lead to food sensitivities, brain fog, and body aches.   The damage done to the gastrointestinal tract affects the absorption of essential vitamins and minerals.  Malabsorption of fats can cause changes in stools.  Insufficient absorption of vitamins and minerals can cause damage to other organs like the thyroid if it can't get enough Selenium, iodine, iron, zinc, and Thiamine.  Brain fog and fatigue can be caused by low Thiamine and other B Complex vitamins.  Vitamin D is needed to regulate the immune system.  One gene is all that's needed to develop Celiac disease.  I know a Celiac diagnosis is a change that can be difficult to get your head around.  Many people go through the five stages of grief.  One stage is "bargaining".  Sounds like you're stuck there.  Every little cheat counts to your detriment.  But sticking to a gluten free diet, makes every meal a success.   Read the comments below the article... Best wishes!  Keep us posted on your progress!
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