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RASH


Ginger38

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Ginger38 Rising Star

Does anyone else get rashes in the same places that just randomly come and go?? I keep getting raised bumps and rash like on the back of my upper thigh. I've tried everything it seems but it always comes back


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knitty kitty Grand Master

You may be interested in this article about Autoimmune Hives.  

https://www.healthline.com/health/skin/autoimmune-hives

Ginger38 Rising Star
7 hours ago, knitty kitty said:

You may be interested in this article about Autoimmune Hives.  

https://www.healthline.com/health/skin/autoimmune-hives

Thank you, I'm definitely wondering if that's what this is. My feet would actually blister when they would break out, but this is a little different. It is like a cluster that gets worse if I scratch or wear hot clothes or tighter pants. I've  had hives off and on my whole life. These didn't seem like the typical hives, but sounds like autoimmune hives can look differently

Scott Adams Grand Master

I had two skin symptoms before I discovered that I had celiac disease, and one was blepharitis (eyelid inflammation and rash), which, after going gluten-free, would flare up if I got any cross-contamination, and dermatitis herpetiformis, which was only in two spot--inside by right ankle, and on the back of my right thumb. The strange thing about the DH was that it never moved around or grew, it was just in two small areas.

DH typically has very tiny clear hard blisters associated with it, and it is extremely itchy, almost like poison oak/ivy itchy. Have you had a dermatologist look at it, as they could do a biopsy for DH.

  • 2 weeks later...
Ginger38 Rising Star
On 11/23/2021 at 7:11 PM, Scott Adams said:

I had two skin symptoms before I discovered that I had celiac disease, and one was blepharitis (eyelid inflammation and rash), which, after going gluten-free, would flare up if I got any cross-contamination, and dermatitis herpetiformis, which was only in two spot--inside by right ankle, and on the back of my right thumb. The strange thing about the DH was that it never moved around or grew, it was just in two small areas.

DH typically has very tiny clear hard blisters associated with it, and it is extremely itchy, almost like poison oak/ivy itchy. Have you had a dermatologist look at it, as they could do a biopsy for DH.

No I haven't had a dermatologist look at it. If I avoid gluten it seems like I don't have any regular issues with it. I will say it was the itchiest stuff ive ever dealt with though. Calamine and hydrocortisone could barely keep the itching down- mine is mainly on the tops of my feet 

Scott Adams Grand Master

I've heard that Ben-Gay cream helps, but since I've not had DH issues in many years never tried it myself.

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      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
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