Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Goodnews followed by a cautionary tale...


AmericanaMama

Recommended Posts

AmericanaMama Contributor

Hi there, I'm about eight months out from being diagnosed with celiac disease. Happy to say that my TTG level dropped from something like 86 to 10. That's not bad. The other part is the cautionary tale bit. If you search for my topics in forums here you'll probably see where I've talked about neuropathy. I've had the problem since April 2020 (yes, the year of the dreaded outset of covid). It amped up to a near taser-like pain November 2020-March 2021. Well...my neurologist checked my B vitamin levels and guess what, nope...not low but crazy high. Ok. Wow. So the thing I thought could help neuropathy was likely making it worse. Sometimes people recover from B6 "hypervitaminosis" (sounds made up but isn't), others never due and it leads to small fiber neuropathy. Cautionary tale time: I assumed (makes me the 'ass' here) since B vitamins were "water soluble" and not "fat" soluble it was not a danger. Wrong. Especially B6. B12 they really don't worry about so much but B6 is dangerous. I was overloading in vitamins and supplements because I thought I needed them with these autoimmune diseases. Be careful out there, folks. It can happen.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,970
    • Most Online (within 30 mins)
      7,748

    GA Peach
    Newest Member
    GA Peach
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Interesting, when I suffered for a few months with ectopics I noticed that carbohydrates would cause indigestion and bloating in my stomach, then that would lead to my heart skipping beats, and I could feel it in my throat, it was very unsettling.  My last serious bout of this was after eating a Muller Rice Pudding for breakfast.   I happened to be wearing a 48 hour halter at the time and cardiology picked it up, but they weren't worried about what they saw. There was some British doctor who'd made some videos on the Vagus nerve that I remember watching at the time which made sense of what I was experiencing, there did seem to be some sort of connection.
    • Scott Adams
      Here are summaries of research articles on celiac disease and migraines: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • Yaya
      I asked my cardiologist about stopping vitamins.  He said his tests account for all detectable vitamins from sources other than food.  I only need to stop them for a couple of days.  He has me keep records of meds and vitamins I've ingested over the past 10 days and prior and he does his calculations.   
    • jessysgems
      Reply to treats I try and eat to bring up the glucose. Sometime I get up 3 times a night and eat something. I don't think food is the issue. A lot of the food they say should help doesn't.  Many mornings my level is 59 and I feel sick, sometimes for hours. It has been recommended I go to an Endocrinologist.  
    • Scott Adams
      Welcome to the forum! This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    This article may also be helpful:
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.