Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctors Vs. Pharmaceutical Companies


ms-sillyak-screwed

Recommended Posts

ms-sillyak-screwed Enthusiast

-


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



marciab Enthusiast

I was thinking that we need to get the makers of gluten free foods involved. They stand to make a lot of money if this catches on. :)

The biggest objections I have seen from people I know has been the cost of the diet and the inconvenience.

The transition from gluten containing foods to gluten free foods would so much easier if we had better food resources.

If we get companies like Bob's, Amy's and Pam's involved and somehow get them to lower their prices, I know I for one would purchase more ready made foods. I just spent $4.29 on a box of 9 cookies. But, I won't do this again anytime soon. I resent paying that much.

They need to start advertising on tv too. Even if it is public tv.

Good thread ... Marcia :)

par18 Apprentice
With something like potentially 30% of the population being suspectible to food intolerances to wheat... I'm thinking maybe the human race took a wrong turn a few thousand years ago when it got addicted to gluey grains. In my fantasy I'd like to see it acknowledged that eating wheat is unhealthy and see the human race change its collective diet back to pre-wheat times, rather than try to affect a cure for something we shouldn't be eating. It's like finding a cure for arsenic poisoning... prevention is the best cure!

Then perhaps it would be possible to walk into any restaurant or go to any friend's house and not have to worry if they're serving any arsenic. :P

Nancy,

This post sums up my feelings exactly. I would like to have more dining/gluten-free product choices. I don't know how effective or cheap anything the drug companies could come up with that would be any better than the diet. I would like to see research more in the development of a grain or product like bread that has the same properites as the forbidden list but would be ok for someone with celiac. The food and beverage industry has the greatest potential for growth if they can produce products that are both flavorful and easy to obtain. The 30% number you made reference to is most important because that is the real potential that a food company should see and not the 1% that keeps getting mentioned. I don't think anyone really knows how many people might be affected by symptoms of this diet. Getting a good product and trying to stimulate the market may be the best approach rather than waiting until the demand is great and then scrambling to produce something. The companies like Glutino (in Canada) have very good products and are already years ahead of the US companies. I am waiting for the day when I can go into any convenience store or resturant and get something to eat just like anyone else. The company in the US that sees this potential will profit way beyond their dreams.

Tom

  • 8 months later...
ms-sillyak-screwed Enthusiast

-

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,165
    • Most Online (within 30 mins)
      7,748

    melindakathleen
    Newest Member
    melindakathleen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...