Can't gain weight ?

[C4Celiac]

I can't gain my initial normal weight back...

I'm not sure if it's because of the Gluten free diet or because my intestines aren't fully healed yet or what.

I'm about 6 pounds off from where my weight always was before this BS started.

I've only gained about 3 - 4 pounds in 1 year and 9 months.  I'm not losing weight but not gaining anymore...

My Dr has never mentioned anything about my weight I assume because I'm normal BMI for my height.

But who wants to look like a skinny loser?  Maybe Chics don't care. But not for Men.

[Scott Adams]

Can I assume that your diet is 100% gluten-free, and you are not getting contamination through meds, supplements, shared kitchen pots, eating out, etc?

If so, the average time to recovery is 2 years. I had pretty severe mucosal damage and struggled for months not fully understanding sourced of hidden gluten, but after around the 2 year mark I began gaining weight (I was stuck at 160lbs. at 6'1" until I was ~27 years old, then shot up to 210lbs. quickly). I'm now trying to get down closer to 210' but it's hard!

[C4Celiac]

I don't take any medication. The only thing I take is vitamin D and that's certified gluten free.  I never eat out from gluten free menus.  No shared pots. 

I'm coming up on 2 years soon..   3 months or so will be 2 years.

My soap and toothpaste is labeled gluten free. That's the only things I put on my body.

Anything packaged that I eat is certified gluten free and I don't eat much packaged.

It might just not be long enough for it to have dropped to normal yet naturally.  I'll see in Dec.

My TTG IGG did drop to normal range on my last check.....barely...    My TTG IGA only dropped by 2 more points but it has been falling with each check.. but only slowly. 

 

 

[Scott Adams]

In the test you show here it is almost 3x the cut off for celiac disease, so it is still definitely high. If you're sure your diet is 100% gluten-free (don't eat in restaurants!), you may want to try casein/dairy-free as well. I already shared this with you but here it is again:

 

[knitty kitty]

@C4Celiac

Are you supplementing with vitamins and minerals?  

[C4Celiac]

only vitamin D.   All my vit and minerals were normal range..

hmm ok so I guess I'll wait till it drops to normal range.  It's been dropping consistently.  but only slowly towards the end.. 😝

[C4Celiac]

11 hours ago, Scott Adams said:

In the test you show here it is almost 3x the cut off for celiac disease, so it is still definitely high.

 

 

I had over 100 so I think 8 is pretty low  🤣

[knitty kitty]

23 minutes ago, C4Celiac said:

only vitamin D.   All my vit and minerals were normal range..

hmm ok so I guess I'll wait till it drops to normal range.  It's been dropping consistently.  but only slowly towards the end.. 😝

You can discuss with your doctor the benefits of supplementing with a B Complex while you're healing.  Did your doctor test all the vitamins or just B12 and Vitamin D?  B12 and Vitamin D are stored in the liver for a couple years.  By the time deficiency is seen in these, the stores have been depleted.  

Blood tests aren't always an  accurate reflection of vitamin levels in the tissues where they are actually used.  The body will starve the tissues of their stores of vitamins in order to put the vitamins in the blood stream to supply major organs like the brain and heart.  Deficiency symptoms of some vitamins can manifest before there's a change in blood levels.  

Celiac Disease affects our abilities to absorb enough vitamins and minerals.  Even the gluten free diet can be deficient in some nutrients. 

Here's an interesting article...

https://www.healthline.com/nutrition/vitamin-b-complex