looking to go gluten and dairy free

[knitty kitty]

@EileenB1022,

How do you know you don't have Celiac Disease?

Have you had genetic testing done?

Have you had antibody tests done?

Help me understand why you are certain you don't have Celiac Disease.

 

[trents]

1 minute ago, knitty kitty said:

@EileenB1022,

How do you know you don't have Celiac Disease?

Have you had genetic testing done?

Have you had antibody tests done?

Help me understand why you are certain you don't have Celiac Disease.

 

I was wondering that too. 

[knitty kitty]

@EileenB1022,

If you were tested three times this year and were not consuming enough gluten to produce antibodies, the tests would have shown False Negatives.

 

[knitty kitty]

11 minutes ago, EileenB1022 said:

i just checked my post. sorry you didnt read it i made it clear i didnt have celiac disease why i wanted to try gluten and dairy free and the issues i was dealing with. pretty much what i told you.  sorry you didnt read it. i dont know why you didnt. you should really read someone's post before you respond.

I was saying in my post that you're in denial about having Celiac Disease.

[EileenB1022]

Just now, knitty kitty said:

@EileenB1022,

How do you know you don't have Celiac Disease?

Have you had genetic testing done?

Have you had antibody tests done?

Help me understand why you are certain you don't have Celiac Disease.

 

i had bloodwork 3 times in a year. who the hell has genetic testing for it? im going to have antibody testing for my autoimmune gastritis. why is this so important to you? why do i need to make you understand? you sound like you have mental problems!

[trents]

We owe you an apology, Eileen. Looking back over your posts I do see that earlier you did mention that you had been tested for celiac disease three times in the past year. As these threads get longer and different one join in along the way it can be easy to lose track of what people said in the early parts of the thread. The other thing I want to say in that regard is that we get a lot of posters who say they had blood tests done but don't realize that diagnosing celiac disease requires special blood tests to be run, not just the usual ones you get along with your annual physical. Or, people get the celiac antibody tests done after they have already gone gluten free and so invalidate the tests.

[knitty kitty]

5 minutes ago, EileenB1022 said:

i had bloodwork 3 times in a year. who the hell has genetic testing for it? im going to have antibody testing for my autoimmune gastritis. why is this so important to you? why do i need to make you understand? you sound like you have mental problems!

I had genetic testing for Celiac Disease because I got so ill consuming gluten.

Many doctors are capable of doing genetic testing.  There's genetic test kits done through the mail.

I do have brain health issues.  I was so deficient in certain vitamins and minerals I developed ataxia and Wernicke's Encephalopathy.  

Yes, my vitamin deficiency induced mental health problems started with irritability and emotional flare ups, too.  

[trents]

Doctors can order genetic tests for celiac disease and you can also get them done commercially through companies like 23andMe: https://www.23andme.com/topics/health-predispositions/celiac-disease/

[EileenB1022]

Just now, knitty kitty said:

I had genetic testing for Celiac Disease because I got so ill consuming gluten.

Many doctors are capable of doing genetic testing.  There's genetic test kits done through the mail.

I do have brain health issues.  I was so deficient in certain vitamins and minerals I developed ataxia and Wernicke's Encephalopathy.  

Yes, my vitamin deficiency induced mental health problems started with irritability and emotional flare ups, too.  

obviously. you may have trouble consuming gluten, if you had read my post and answers i have been tested 3 count it 3 times. im sorry if you dont understand having a non funtionin gallbladder to no gallbladder affects your stomach then add in autoimmune gastritis which is more serious than regular gastritis. i lost 30 pounds in a year not because of gluten but because of my GI issues. even after reading all this you have the nerve to harass me. go away.

Just now, trents said:

Doctors can order genetic tests for celiac disease and you can also get them done commercially through companies like 23andMe: https://www.23andme.com/topics/health-predispositions/celiac-disease/

i hope your not talking to me ? better not be.

[trents]

Eileen, in post #15 you said, "who the hell has genetic testing for it?" You seemed to me to be asking how you could get that done. Sorry if I misunderstood.

[knitty kitty]

9 minutes ago, EileenB1022 said:

obviously. you may have trouble consuming gluten, if you had read my post and answers i have been tested 3 count it 3 times. im sorry if you dont understand having a non funtionin gallbladder to no gallbladder affects your stomach then add in autoimmune gastritis which is more serious than regular gastritis. i lost 30 pounds in a year not because of gluten but because of my GI issues. even after reading all this you have the nerve to harass me. go away.

I have had my gallbladder removed.  I have autoimmune gastritis.  I have Type Two Diabetes.  I have hashimotos thyroiditis.  I lost sixty pounds in six weeks due to my GI issues.  

I'm not harassing.  I'm educating.

Show us the results of your tests for Celiac Disease testing.

Edited July 21, 2022 by knitty kitty
Typo correction

[EileenB1022]

Just now, trents said:

Eileen, in post #15 you said, "who the hell has genetic testing for it?" You seemed to me to be asking how you could get that done. Sorry if I misunderstood.

yes you misunderstood. i was been sarcastic as it was such a ridicoulas statement. i had 3 bloodtests you know im just gonna stop responding to these dumb ass remarks. read my post i have GI issues not celiac. i wish celiac was all im dealing with. obviously noone here has ever had GI issues or had their gallbladder out or dealt with a non funtioning gallbladder.

[EileenB1022]

Just now, knitty kitty said:

I have had my gallbladder removed.  I have autoimmune gastritis.  I have Type Two Diabetes.  I hashimotos thyroiditis.  I lost sixty pounds in six weeks due to my GI issues.  

I'm not harassing.  I'm educating.

Show us the results of your tests for Celiac Disease testing.

i dont have to show you squat. its none of your buisness and i dont believe one word you said. you are a psycho! i will not be responding to you again as you are mentally sick!

[EileenB1022]

8 minutes ago, trents said:

We owe you an apology, Eileen. Looking back over your posts I do see that earlier you did mention that you had been tested for celiac disease three times in the past year. As these threads get longer and different one join in along the way it can be easy to lose track of what people said in the early parts of the thread. The other thing I want to say in that regard is that we get a lot of posters who say they had blood tests done but don't realize that diagnosing celiac disease requires special blood tests to be run, not just the usual ones you get along with your annual physical. Or, people get the celiac antibody tests done after they have already gone gluten free and so invalidate the tests.

oh so i guess according to you, 3 bloodtests were wrong? are you kidding me? im pretty sure the doctors know what they are doing. not that its any of your buisness but i was tested a month ago from a biopsy during a endoscope so take that in your hat and shove it!

[trents]

15 minutes ago, EileenB1022 said:

yes you misunderstood. i was been sarcastic as it was such a ridicoulas statement. i had 3 bloodtests you know im just gonna stop responding to these dumb ass remarks. read my post i have GI issues not celiac. i wish celiac was all im dealing with. obviously noone here has ever had GI issues or had their gallbladder out or dealt with a non functioning gallbladder.

Did you read knitty kitty's recent post? There she shared: "I have had my gallbladder removed.  I have autoimmune gastritis."

Going back to your original post, if all you need is advice on how to eliminate dairy and gluten, you don't need our assistance. There is plenty of information online about that. We were pressing you to provide evidence that you understood that the three tests you had done last year were specifically geared to detect celiac disease and just not generic blood tests looking for whatever and that the tests were done while you were still consuming regular amounts of gluten. We were hoping you would provide some actual data about tests names and numbers like, "tTG-IGA=7. Reference range is 0-5. Negative". But you seem either unwilling or unable to do this so we will get out of your life and leave you to your own devices. We are here to help and not harass. 

And no, most general practitioners don't know what they are doing when it comes to diagnosing celiac disease and many GI docs are almost as clueless. If that sounds arrogant I'm sorry but most people who participate on this forum will back me up on that. That is our collective experience.

Edited July 21, 2022 by trents

[knitty kitty]

Blood tests can be false negatives if not enough gluten was eaten for a long enough duration prior to testing.

Damage typically seen in Celiac Disease can easily be missed due to the size of the small intestine (the size of a tennis court if laid out flat) and the patchiness of the damage.  Some damage is out of the reach of endoscope.  Some damage can only be seen in biopsies under a microscope with special staining.  Some doctors don't know how or where to take biopsies for Celiac.

Gene tests don't require you to eat gluten.  Your genes don't change.

 

19 minutes ago, EileenB1022 said:

i dont have to show you squat. its none of your buisness and i dont believe one word you said. you are a psycho! i will not be responding to you again as you are mentally sick!

 

Yes, thanks for that.  

Ask your next doctor to test for Celiac genetics to rule it out for certain.  

Closed minds don't get out of illness.

[EileenB1022]

Just now, trents said:

Did you read knitty kitty's recent post? There she shared: "I have had my gallbladder removed.  I have autoimmune gastritis."

Going back to your original post, if all you need is advice on how to eliminate dairy and gluten, you don't need our assistance. There is plenty of information online about that. We were pressing you to provide evidence that you understood that the three tests you had done last year were specifically geared to detect celiac disease and just not generic blood tests looking for whatever and that the tests were done while you were still consuming regular amounts of gluten. We were hoping you would provide some actual data about tests names and numbers like, "tTG-IGA=7. Reference range is 0-5. Negative". But you seem either unwilling or unable to do this so we will get out of your life and leave you to your own devices. We are here to help and not harass. 

And no, most general practitioners don't know what they are doing when it comes to diagnosing celiac disease and many GI docs are almost as clueless. If that sounds arrogant I'm sorry but most people who participate on this forum will back me up on that. That is our collective experience.

i'm leaving i dont need to hear any of this bs. where do you all get off demanding proof from me? are you all psycho or do you think thats your buisness? well its not. i guess you didnt read i had a biopsy last month during a endoscope proving i dont have celiac disease. as far as knitty kitty if you want to back her up your s psycho as she is. like i believe she has autoimmune gastritis. she said that because i said it and autoimmune gastritis is nothing to joke about. she's a psycho, your a psycho! im sorry if you two think i "owe you something"! dont bother writing again because i am done! i think you psychos wish i had celiac for some strange deranged reason. both of you go back to the hole you crawled out from. im done responding! goodbye losers!

[trents]

I hope you find the help for your medical issues that you are looking for. 

[knitty kitty]

This is a site for Celiac Disease and related problems.  

We are trying to educate others about how Celiac can overlap and affect other autoimmune diseases and overall health. 

If you want to close your mind to the facts, that's your choice and you get to deal with the consequences.  

Name calling is not necessary.  

 

[knitty kitty]

Just wanted to add for future reference that anemia, like pernicious anemia, iron deficiency anemia, B12 deficiency anemia, affects not only red blood cell production but also affects white blood cell production.  White blood cells include antibodies like antibodies against gluten.  So having anemia can result in false negatives on blood tests for Celiac antibodies.

Diabetes can also affect antibody production and can cause false negatives on Celiac antibody production.

 

[knitty kitty]

On 7/17/2022 at 10:04 AM, EileenB1022 said:

ok. i dont generally eat wheat or rye at least not bread wise. 

 

On 7/17/2022 at 1:02 PM, EileenB1022 said:

 I think I Posted a endoscope showed hyperplasia and the possibility of autoimmune gastritis.  

 

9 hours ago, EileenB1022 said:

i have been tested 3 times this year for it! 

 

Not eating enough gluten prior to antibody testing will not give accurate results.  

Hyperplasia is found in Celiac Disease.  Autoimmune gastritis is a common finding in Celiac Disease.  

 

[Wheatwacked]

Sorry it seems as if we are intruding.

On 7/17/2022 at 10:08 AM, EileenB1022 said:

just a few questions.. like they have chicken nuggets and other chicken type products they are gluten and dairy free. also is gatorade ok to drink? and for breakfast is cheerios ok? 

If they say gluten free it should be. Does Gatorade contain gluten? Pepsi's long answer to a short question    "There is a possibility the ingredients were exposed to/stored next to gluten-containing foods during processing."

Cheerios: "Our oats are then skillfully milled into oat flour that is verified to be gluten free through continuous sampling and empirical testing."

Has Non Celiac Gluten/Wheat Sensitivity been considered by your doctors? It has many of the same symptoms as Celiac and is caused by gluten, but Celiac Disease is ruled out first. As yet the only way to diagnose is to rule out Celiac Disease, which you have done and then to show a positive response to removing all gluten.