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Testing advice


Ddowda74

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Ddowda74 Rookie

Hi! I am new to this website. I have had many years of issues with stomach issues and intolerance to a lot of things. This past year  I have developed a rash on my cheeks (thought to be roseacea) and sometimes my chest and was told by my doctor that she absolutely believes that I am gluten intolerant. I also have developed bad anxiety/panic attacks. I was scoped 10 years ago and they did not find celiac. I am wanting to know  what I should be ask to be tested for. My endocrinologist highly suggests going gluten free because she said I am text book case for symptoms of gluten intolerance. Should I be tested for other food allergies. Did you notice that skin rash/rosacea and anxiety fade after being gluten free? My thyroid also goes hyperactive..which my endocrinologist said the thyroid battles with gluten. Any suggestions would be appreciated. I don’t know how far to go with being gluten free..but I am willing to try anything as my symptoms continue to get worse. Thanks in advance for any suggestions. 
 

Dana


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Scott Adams Grand Master

All the symptoms you mention could be linked to celiac disease or non-celiac gluten sensitivity, so I can understand why your doctor thinks that you may want to try going gluten-free. If you are gluten sensitive, then a gluten-free diet would likely relieve many, if not all of your symptoms. 

You mentioned having an endoscopy done that was negative, but the normal first step would have been a celiac disease blood panel before that. Do you recall having this done? If so, could you get the test results and share them here? 

In order to get a blood test you would need to eat ~2 slices of wheat bread daily for 6-8 weeks beforehand.

Posterboy Mentor
On 8/7/2022 at 10:40 PM, Ddowda74 said:

Hi! I am new to this website. I have had many years of issues with stomach issues and intolerance to a lot of things. This past year  I have developed a rash on my cheeks (thought to be roseacea) and sometimes my chest and was told by my doctor that she absolutely believes that I am gluten intolerant. I also have developed bad anxiety/panic attacks. I was scoped 10 years ago and they did not find celiac. I am wanting to know  what I should be ask to be tested for. My endocrinologist highly suggests going gluten free because she said I am text book case for symptoms of gluten intolerance. Should I be tested for other food allergies. Did you notice that skin rash/rosacea and anxiety fade after being gluten free? My thyroid also goes hyperactive..which my endocrinologist said the thyroid battles with gluten. Any suggestions would be appreciated. I don’t know how far to go with being gluten free..but I am willing to try anything as my symptoms continue to get worse. Thanks in advance for any suggestions. 
 

 

On 8/7/2022 at 10:40 PM, Ddowda74 said:

My thyroid also goes hyperactive..which my endocrinologist said the thyroid battles with gluten. Any suggestions would be appreciated. I don’t know how far to go with being gluten free..but I am willing to try anything as my symptoms continue to get worse. Thanks in advance for any suggestions. 

Ddowda,

Taking some Magnesium and Selenium (eating Brazil nuts) and taking a Zinc/Copper supplement might help your Thyroid issues.  I had the beginnings of a thyroid problem once......and focusing on my metals like Zinc, Selenium and Magnesium helped my thyroid problems!

Most doctor's don't know about the link between a Thyroid problem (especially hyperactive Thyroid issues (commonly known as Grave's disease) and I only recently found out about it myself....

But after taking the above Minerals (especially the Zinc, Magnesium and Selenium) my thyroid problems got better....

See this research entitled "Magnesium metabolism in hyperthyroidism"

https://pubmed.ncbi.nlm.nih.gov/8930527/

Where they note quoting

"These observations clearly indicate that in Graves' disease, the magnitude of magnesium metabolism alteration is closely related to the extent of the increase in thyroid hormones in plasma."

And Magnesium is an important nutrient for a healthy immune system.

I also recommend trying some thiamine......as it also has been shown to be important for a healthy thyroid.

See this research about it entitled "Thiamine and Hashimoto's thyroiditis: a report of three cases"

https://pubmed.ncbi.nlm.nih.gov/24351023/

I hope this is helpful but it is not medical advice.

Posterboy,

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    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
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      Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products have been processed in such a way to remove enough of the protein gluten to comply with the FDA regulation but usually do retain some gluten and we usually get reports from some people on this forum who fall in the more sensitive range that such products cause them to react. Hope this helps. So, you may just have to experiment for yourself.
    • trents
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