Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Minimum gluten for challenge for EGD biopsy


Katerific

Recommended Posts

Katerific Explorer

My EGD is in 2 1/2 weeks.  Since I am super-sensitive to gluten I am wondering if there is a minimum amount of gluten that would make the biopsy positive.  I tested 1/4 tsp of vital wheat gluten and was very ill with vomiting that day and then felt really crummy for about a week afterward.   Does it make sense that a severe reaction is causing antibodies and so perhaps a smaller dose would also work?  I keep thinking about wanting to get a definite diagnosis but I don't want to be so sick in the meantime.

I have been gluten-free to the best of my ability for about a month and yet I still have many symptoms and don't feel well.  How long to feel better?

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

If you are getting an endoscopy to test for celiac disease you need to eat at least 2 slices worth of wheat bread daily for at least 2 weeks before the test, otherwise you may end up with false-negative results.

If you are this sensitive to gluten, can I as why you need to get this test? Why not just go gluten-free?

Katerific Explorer

I had my Colonoscopy and EGD yesterday.  I ate 2 slices of bread for 2 weeks.  I had bad nausea for several hours every day.  The doctor didn't see any small intestine damage but took biopsies.  He suspects Microscopic Colitis and took biopsies of the large intestine.  When I told him I was having watery diarrhea for almost a year at 10 times a day for many days, he right away said MC.  Either way, no more gluten for me.  

Katerific Explorer

Pathology report shows collagenous colitis in the colon and moderate intraepithelial lymphocytes in the duodenum, but no villous atrophy.  I talked to the GI doctor for 30 seconds before and after my procedure while I was coming out of anesthesia.  My primary care punted me to the GI doctor, so nobody really put much thought into my TTG test results, my genetic report, history or my symptoms.  Today, the GI doctor's nurse said no follow-up unless the Budesonide doesn't work and said celiac biopsy was "non-specific".   She gave no dietary recommendations.  I'll take the medication and based on my own research, go gluten-free and dairy-free since both are bad for MC and Celiac.  Oh, and I'm going to get a new primary care doctor. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      15

      Related issues

    2. - knitty kitty replied to science enthusiast Christi's topic in Coping with Celiac Disease
      4

      Sugar intolerance 10 years into gluten-free diet

    3. - Yaya replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Great Value Veggies cannot be trusted.

    4. - trents replied to colinukcoeliac's topic in Gluten-Free Restaurants
      8

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    5. - Peggy M replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      25

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,483
    • Most Online (within 30 mins)
      7,748

    AntiWheatBabe
    Newest Member
    AntiWheatBabe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      No they just said stop all supplements two weeks before.Its so frustrating im not at all happy with my "care team",because im not being seen for my sibo infact my appointment was dropped, I even asked about it and they said Dr prescribed you meds and I stated yes but I again had a reaction.I feel bothersome. I need to find another gi but its useless because its going to be same thing around here.i just feel lost and in tbe medical file they are writing what ever and its really not ok. In fact i dont want to go unless they record the conversation. Yes its that bad.im only having  care and concern for my ms whose Not part of the same health association that pcp and gi are with.I will have to look into changing to another. Mayo clinic is great but its the celiac, sibo, ect and all related issues that need addressed but current " careteam says call when needed. No plans of scheduled dates
    • knitty kitty
      @science enthusiast Christi, It could be Small Intestinal Bacterial Overgrowth (SIBO).  Lots of people with Celiac develop it, especially if they eat a high carbohydrate diet.   Colonic bacteria crawl into the small intestine and ferment the excess carbohydrates and prebiotic fibers which causes lots of gas.   I changed my diet to the Autoimmune Protocol Diet (AIP), a Paleo diet, and supplemented with a B Complex and Benfotiamine, a form of Thiamine that helps heal the intestines and has antibacterial properties.  I had improvement within a few days.  The AIP diet starves out the carbohydrate loving SIBO bacteria and allows more beneficial bacteria a chance to repopulate. Hope this helps.
    • Yaya
      Yes, a rule I usually follow. Pict Sweet was always known to be gluten-free and after many years of use with no problems, it's easy to forget to look.    
    • trents
      "I am quite convinced this gluten is coming from exposure whilst eating out.  Small levels, that don't make me violently sick, but might give me a mild stomach upset." cristiana, are you saying this is your actual experience or are you speculating here?
    • Peggy M
      I have tried many Vit D. Solgad is one that did not cause any problems. I take 5000IU. Most of their vitamins are gluten-free certified but this is not.  They can be purchased direct from Solgar or Amazon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.