Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight loss. Why?


Meg80

Recommended Posts

Meg80 Newbie

Hi everyone!

Background, I was diagnosed with celiac disease about 8 years ago. I have since become more and more sensitive to the cross contamination end. Because of that I am VERY careful. So here is the problem….I have lost a total of 26 pounds in a 5 mo period (not complaining at all) It’s held steady for about a month now. But nowhere at any time did I change anything about diet and exercise. Just trying to find someone that may have a similar experience or maybe could answer why. 
**ps I plan to see the Dr ***


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

Welcome to the forum, @Meg80!

Would you give us an idea of what type of foods you eat?  Do you eat processed gluten free facsimile foods? Whole foods?  

What type of exercise do you do?  How often?  Intensity?

When was the last time you got glutened?  What do you think was cross contaminated that made you sick?

Meg80 Newbie

Well as far as my diet, I cook most everything. I don’t eat out (very rarely), not to many processed things.
Activity, well I’m a nurse so I’m always on my feet, plus I’m in school. So not a whole lot of time for exercise.

I honestly can’t tell you, most often I don’t eat during the day. I eat mainly after work in the evenings, but I don’t limit anything. That has always been though. I’m on meds that cause me to have no appetite.

the last cross contamination was last summer. Very bad reaction. Been even more careful since. 
 

so nothing has changed. So I don’t know why I’m losing

knitty kitty Grand Master

Which meds are you on that cause no appetite?  Some medications can interfere with vitamin absorption.

Check out Mast Cell Activation Syndrome.  In Celiac disease mast cells multiply and become hypersensitive and degranulate easily.  Thiamine supplementation can help with mast cell regulation.  

Celiac people can become vitamin deficient easily, considering malabsorption and dietary limitations.  Checking for nutritional deficiencies is part of proper follow up care for Celiac people. Supplementing with B Complex, Thiamine and magnesium would help.

You may want to talk to a nutritionist about your diet and see if there's a way to get more nutrients into you throughout the day.

Meg80 Newbie

Thank you, didn’t think about that. I am sure the Dr will do blood work and we will see. Thank you

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748

    Chels22
    Newest Member
    Chels22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...