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Vitamins

mdixon

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mdixon Rookie
mdixon
Posted

Hello All

My daughter is 12 and diagnosed 3 weeks ago. She has small stature. She weighs 69 pounlnds and is a head under her peers. She has been taking 3 calcium supplements a day and a Centrum Vitamin. I'm a little worried that that is not enough especially where puberty should be or will be starting. Is anyone giving addtional supplements. I'm also wondering when I will start to see results in her growth. Thanks in advance for any input you may have.

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gf4life Enthusiast
gf4life
Posted

Hi mdixon,

You could ask the doctors to run some tests for various deficiencies on your daughter and then you would be able to customise her vitamin/mineral supplements to fit her needs.

Once her intestines heal on the gluten-free diet you should start to see some growth. It may be all of a sudden or it may be gradual, but be very thankful that you were able to get her diagnosed while she still has time to grow!

God bless,

Mariann

ryebaby0 Enthusiast
ryebaby0
Posted

If she takes the calcium with oj, that will help a little, but really her doctor should test levels. A low zinc level (which is likely with malabsorption) will really slow down growth; Patrick took zinc for almost 4 months! Iron, folate, potassium -- make sure it's a multi with minerals, but a "regular" vitamin just can't make up for certain deficiencies.

ashlees-mom Rookie
ashlees-mom
Posted

mdixon,

The first thing we noticed with our daughter was her slow growth, but since she is much younger, she has more time to catch up. We had first researced Growth Hormone Deficiency and in doing that I found that it is possible to hold off puberty in order to let the growth catch up before her bones fuse and it is too late. It definately has it's drawbacks (it may be hard on her to see friends develop before her, and I'm sure there are medical considerations) but you may want to discuss it with your doctor and make the best decision for her. If you feel she is lacking so much height that it could affect her throughout life, it may be worth considering. Just a thought!

  • 4 months later...
celiac3270 Collaborator
celiac3270
Posted

Try not to worry about growth. It might take a few months. Over the past six months I slowly went from 5' and 70 pounds to 5'2" 79 pounds (oh, btw, I am a 13 year-old boy). Over the past month, my previously continuous symptoms haven't appeared at all!! Additionally, I've gained 5 pounds in 3 weeks (now I'm 84)!!! It will come......try not to stress out, cause it can take months before serious growth begins. I haven't taken any supplements or vitamins consistently and I'm doing MUCH better.....I'm actually starting to look normal (no longer boney).....

have patience.....the growth will come....although I guess a supplement couldn't hurt.......just trying to pass on some encouragement.

p.s. I, too, drink oj w/ calcium........well, I have been drinking a glass a day until recently when i had to eliminate acidic foods/drinks from my diet.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      High DGP-A with normal IGA

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      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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