Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy prep


NanceK
Go to solution Solved by Scott Adams,

Recommended Posts

NanceK Apprentice

Dulcolax was included in my colonoscopy prep instructions. I had already taken the tablets and wondered if it was gluten-free as an afterthought and realized it wasn't.  GI symptoms did not lead to my diagnosis - osteoporosis, neuropathy and sinus issues led to mine.  After taking the tablets, I instantly had a headache, nose was stuffy, tingling in my feet.  I don't understand why this is listed for GI prep for colonoscopy when some patients may have celiac disease?? Has anyone else run into this?  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Why do you believe it contained gluten? Please see the thread below, as it looks to have no gluten ingredients:

 

 

NanceK Apprentice
6 hours ago, Scott Adams said:

Why do you believe it contained gluten? Please see the thread below, as it looks to have no gluten ingredients:

 

 

Hi Scott…The prep included four Dulcolax tabs and 8 oz of Miralax in 64-ounces of Gatorade. I knew Miralax was gluten-free, but checked Dulcolax and the article I read said it was not gluten-free. I did notify my GI doctor’s nurse and was told they’ll look into it. As stated, however, I had already taken them. Anyway, this is the article I read…

https://www.verywellhealth.com/gluten-free-diarrhea-constipation-and-heartburn-drugs-4139871

 

 

Scott Adams Grand Master

I don't trust that article, but do trust this site, where you can search for the ingredients:

https://dailymed.nlm.nih.gov/dailymed/ 

NanceK Apprentice
On 1/20/2023 at 12:29 PM, Scott Adams said:

I don't trust that article, but do trust this site, where you can search for the ingredients:

https://dailymed.nlm.nih.gov/dailymed/ 

I went ahead and called the company directly and spoke to a rep there. He asked for the Lot # on the box because he said it depends on where the lot is processed as there are many processing facilities. He said they cannot guarantee the product is gluten-free since they don’t check it for gluten in the final processing step. I’ll be mentioning it to my GI specialist so they can perhaps make a note in their colon prep instructions. Since I had a weird response to it before even wondering if it was gluten-free (headache, tingling in extremities, stuffy nose), I won’t be taking it again.

  • Solution
Scott Adams Grand Master

So I believe that there is a difference between a CYA statement like "they cannot guarantee the product is gluten-free since they don’t check it for gluten in the final processing step," and the reality that no gluten ingredients are used, and since this is an FDA approved lab that makes the drug, they must follow very strict cleaning and processing rules when making drugs. I would not worry about gluten in this medication.

  • 7 months later...
Samo1 Rookie
On 1/18/2023 at 2:08 PM, NanceK said:

Dulcolax was included in my colonoscopy prep instructions. I had already taken the tablets and wondered if it was gluten-free as an afterthought and realized it wasn't.  GI symptoms did not lead to my diagnosis - osteoporosis, neuropathy and sinus issues led to mine.  After taking the tablets, I instantly had a headache, nose was stuffy, tingling in my feet.  I don't understand why this is listed for GI prep for colonoscopy when some patients may have celiac disease?? Has anyone else run into this?

Yes this is insane, the pharmacist (student) handed it to me. I went home and read the ingredients and brought it back. I said to him, you do realize I have celiac and it's on my file. Also, my Drs office recommended Peglyte, which comes with those tablets you need to take as, it's a kit.  If your dr actually, instructed you to take this, omg that's crazy. However, I tend to have a feeling the admin/receptionists do not read files properly and just pass on paperwork to patients. I am so sorry you went through this. This stuff makes me livid. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,265
    • Most Online (within 30 mins)
      7,748

    V Arnold
    Newest Member
    V Arnold
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...