Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Next steps towards well being


Gunni
Go to solution Solved by trents,

Recommended Posts

Gunni Rookie

Thanks to a wealth of knowledge and tips here on the forum I've made some meaningful progress towards better health.

I most certainly was deficient in B1, causing the symptoms I described in this post as diabetes like

Diabetes like symptoms and more - Celiac.com

and those symptoms have now mostly subsided with that supplementation.

Also, some of my more pronounced symptoms at night, usually following high fat containing meals, have largely faded due to supplementing with betaine and pepsin during meals.

 

I am however still dealing with severe constipation regularly, I feel this issue has been lessened but (and this has been confirmed via imaging) a lot of what I eat is still just getting held up in my digestive system causing issues.

My solution is drinking a lot of hot drinks and an occasional enema..

Now while it does feel like I'm on the right path, I'm unsure of whether I should up my dosages or if I might be missing some other integral digestive aid via vitamin/mineral.

Would love to hear your thoughts and suggestions, thanks!

My current supplement regimen is
  Daily with first meal
    100mcg selenium
    Vitamin d3 4000IU
    Strong b complex

  1-2x daily with meals
    3x 650mg betaine hci, 250.000 pepsin
    400mg Magnesium citrate
    100mg B1 thiamin

And I crush most of these before ingesting.
 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

How much fiber are you getting each day? Have you done the math on that? The medical community recommends getting 25-30 grams per day but most people fall well short of that. This is especially true when people rely a lot on processed gluten free foods. The celiac community doesn't have the benefit of being able to consume a lot of mainline whole grain foods because they usually contain wheat, typically, the main source of the fiber in them.

Gunni Rookie

Thanks @trents, I have for sure been slacking on the fibers... I used to ingest a lot of psyllium husk so I'll get right back on that :D

And happy to hear any more suggestions/ideas from the forum gurus here!

  • Solution
trents Grand Master

30 grams of fiber seems to be the magic number for me insofar as regularity goes. And make sure you drink plenty of fluids with it if you take psyllium.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,496
    • Most Online (within 30 mins)
      7,748

    linda briers
    Newest Member
    linda briers
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MelissaClinPsyD
      A confirmed diagnosis of refractory coeliac disease is required to participate in the study unfortunately. Apologies you are feeling miserable even though you have remained gluten-free, I hope you are able to receive further understanding as to why from the relevant medical professional. I am hoping to provide copies of the content used in this study following its completion end of this year so will make a note to post on here when the study is complete, a copy of the resources used from the group. 
    • DanteZaffar
      Do you think it’s a vitamin issue that could make celiac symptoms worse during recovery ? 
    • trents
      Multivitamin products are seldom potent to offset the vitamin and mineral deficiencies that typically result from long term undiagnosed celiac disease. We commonly recommend sublingual B12, a B-complex 5-10k IU of D3, 400 mg daily of magnesium glycinate, and zinc picolinate. The forms of certain vitamins like magnesium and zinc are important since it has a significant impact on absorbability. If you live near a Costco, the Kirkland Signature series and Nature Made lines are good quality choices and economical. And they will indicate on the packaging if they are gluten free.
    • DanteZaffar
      I’ve been taking a multivitamin however my doctors appointment is not available till next month for any specific vitamin tests 
    • trents
      Are you addressing possible/probable vitamin and mineral deficiencies through some serious supplementation?
×
×
  • Create New...