Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Next steps towards well being


Gunni
Go to solution Solved by trents,

Recommended Posts

Gunni Rookie

Thanks to a wealth of knowledge and tips here on the forum I've made some meaningful progress towards better health.

I most certainly was deficient in B1, causing the symptoms I described in this post as diabetes like

Diabetes like symptoms and more - Celiac.com

and those symptoms have now mostly subsided with that supplementation.

Also, some of my more pronounced symptoms at night, usually following high fat containing meals, have largely faded due to supplementing with betaine and pepsin during meals.

 

I am however still dealing with severe constipation regularly, I feel this issue has been lessened but (and this has been confirmed via imaging) a lot of what I eat is still just getting held up in my digestive system causing issues.

My solution is drinking a lot of hot drinks and an occasional enema..

Now while it does feel like I'm on the right path, I'm unsure of whether I should up my dosages or if I might be missing some other integral digestive aid via vitamin/mineral.

Would love to hear your thoughts and suggestions, thanks!

My current supplement regimen is
  Daily with first meal
    100mcg selenium
    Vitamin d3 4000IU
    Strong b complex

  1-2x daily with meals
    3x 650mg betaine hci, 250.000 pepsin
    400mg Magnesium citrate
    100mg B1 thiamin

And I crush most of these before ingesting.
 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

How much fiber are you getting each day? Have you done the math on that? The medical community recommends getting 25-30 grams per day but most people fall well short of that. This is especially true when people rely a lot on processed gluten free foods. The celiac community doesn't have the benefit of being able to consume a lot of mainline whole grain foods because they usually contain wheat, typically, the main source of the fiber in them.

Gunni Rookie

Thanks @trents, I have for sure been slacking on the fibers... I used to ingest a lot of psyllium husk so I'll get right back on that :D

And happy to hear any more suggestions/ideas from the forum gurus here!

  • Solution
trents Grand Master

30 grams of fiber seems to be the magic number for me insofar as regularity goes. And make sure you drink plenty of fluids with it if you take psyllium.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.