Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tingling/numbness of face and limbs


Raquel2021

Recommended Posts

Raquel2021 Collaborator

Hello everyone,

I have been gluten free for 2 years.  Diagnosed in 2020. And since last August I have been experiencing numbness on my face/hard right side and also on my limbs. It comes and goes. Has anyone experienced anything like it? My labs showed last year my antibodies went back to normal on the gluten free diet.  Currently went dairy/eggs free and eating a nutritional dense diet but I am still experiencing those symptoms.  Waiting to see a neurologist now. Anyone else with these issues?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



captaincrab55 Collaborator
1 hour ago, Raquel2021 said:

Hello everyone,

I have been gluten free for 2 years.  Diagnosed in 2020. And since last August I have been experiencing numbness on my face/hard right side and also on my limbs. It comes and goes. Has anyone experienced anything like it? My labs showed last year my antibodies went back to normal on the gluten free diet.  Currently went dairy/eggs free and eating a nutritional dense diet but I am still experiencing those symptoms.  Waiting to see a neurologist now. Anyone else with these issues?

Raquel 2021,  Has your Vitamin B-12 been checked lately?   Eve the low end of the safe level can be an issue for some of us.  I found that out last Friday.  

captaincrab55 Collaborator
Raquel2021 Collaborator
11 hours ago, captaincrab55 said:

Raquel 2021,  Has your Vitamin B-12 been checked lately?   Eve the low end of the safe level can be an issue for some of us.  I found that out last Friday.  

Thank you. Just got it checked and it was 220 . Dr says that is still normal but I think is on the low end. 

11 hours ago, captaincrab55 said:

Thank you. Yes I have read about it. I hear in Europe 500 to 1300 is optimal range. Here in Canada I guess that's different. 

Raquel2021 Collaborator
2 minutes ago, Raquel2021 said:

Thank you. Just got it checked and it was 240 . Dr says that is still normal but I think is on the low end. 

Thank you. Yes I have read about it. I hear in Europe 500 to 1300 is optimal range. Here in Canada I guess that's different. 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,484
    • Most Online (within 30 mins)
      7,748

    Miaokang
    Newest Member
    Miaokang
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It looks like their most recent clinical trial just finished up on 5-22-2025.
    • Fabrizio
      Dear Scott,  please check the link https://clinicaltrials.gov/study/NCT05574010?intr=KAN-101&rank=1 What do you think about it?
    • Scott Adams
      KAN‑101 is still very much in development and being actively studied. It has not been dropped—rather, it is advancing through Phases 1 and 2, moving toward what could become the first disease‑modifying treatment for celiac disease. https://anokion.com/press_releases/anokion-announces-positive-symptom-data-from-its-phase-2-trial-evaluating-kan-101-for-the-treatment-of-celiac-disease/ 
    • knitty kitty
      Thiamine interacts with all the other B vitamins.  Thiamine and B 6 make a very important enzyme together. With more thiamine and other vitamins available from the supplements your body is absorbing the ones you need more of.  The body can control which vitamins to absorb or not.  You're absorbing more and it's being transported through the blood.   It's common to have both a Thiamine and a Pyridoxine deficiency.  Keep taking the B Complex. This is why it's best to stop taking supplements for six to eight weeks before testing vitamin levels.  
    • badastronaut
      Yes I took a supplement that had B6 in it, low dosage though. I've stopped taking that. B1 doesn't affect other B vitamin levels? 
×
×
  • Create New...