Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pure encapsulations anyone?


Raquel2021

Recommended Posts

Raquel2021 Collaborator

Hi,

Has anyone here try pure encapsulations vitamins? They say they are gluten free but took a B12 and felt like I had been glutenned?  Felt like there was a fire in me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiacmanbill Explorer

i stopped taking pure encapsulations vitamins besides their zinc the only b12 i have had luck with was the Jarrows lozenge b12 I would reccomend a lozenge over a b12 capsule anyway its much more effective especially with our guts cheers friend hope you feel better soon

Raquel2021 Collaborator
1 hour ago, Celiacmanbill said:

i stopped taking pure encapsulations vitamins besides their zinc the only b12 i have had luck with was the Jarrows lozenge b12 I would reccomend a lozenge over a b12 capsule anyway its much more effective especially with our guts cheers friend hope you feel better soon

Thank you.  Just curious did you also get a reaction from pure encapsulations? Did you feel sick? They say they are gluten free.  I don't understand.  This whole celiac issue is so consuming. I am so tired of it.

What is the difference with the one you now take? 

Celiacmanbill Explorer

not much of a difference other than its a lozenge that dissolves under the tongue the pure encapsulations products i've bought from amazon from third party sellers have made me feel sick but ones i've ordered directly from them i havent had a problem the only thing i take from them now is zinc just because i havent gotten a new one yet it would be good to contact the company and ask them about their gluten cross contamination prevention measures

Raquel2021 Collaborator

Thanks I got mine from Amazon.  I wonder if is fake then. I have called so many companies in the past 2 years. They are often have not clue about gluten.  If they say is gluten free it might still not be. Just my experience.  The only way to know is to see if it makes you sick. The only valuable information I have learned have been here on the internet forums from other celiacs.

shadycharacter Enthusiast
25 minutes ago, Raquel2021 said:

Thanks I got mine from Amazon.  I wonder if is fake then. I have called so many companies in the past 2 years. They are often have not clue about gluten.  If they say is gluten free it might still not be. Just my experience.  The only way to know is to see if it makes you sick. The only valuable information I have learned have been here on the internet forums from other celiacs.

I looked up the ingredients. The Pure Encapsulation b12 capsules contain

Hypoallergenic plant fiber (microcrystalline cellulose), Methylcobalamin and Vegetarian capsule (hydroxypropyl methyl cellulose). 

 

Celiacmanbill Explorer
On 3/19/2023 at 3:22 PM, Raquel2021 said:

Thanks I got mine from Amazon.  I wonder if is fake then. I have called so many companies in the past 2 years. They are often have not clue about gluten.  If they say is gluten free it might still not be. Just my experience.  The only way to know is to see if it makes you sick. The only valuable information I have learned have been here on the internet forums from other celiacs.

i think youre right about PURE ENcapsulations i forgot i take their liquid Vitamin d3 and i have had horrible issues whenever i take it, i am now realizing i'm going to order another vitamin d3 and zinc never buying pure encapsulations again


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Raquel2021 Collaborator
7 minutes ago, Celiacmanbill said:

i think youre right about PURE ENcapsulations i forgot i take their liquid Vitamin d3 and i have had horrible issues whenever i take it, i am now realizing i'm going to order another vitamin d3 and zinc never buying pure encapsulations again

Glad is not just me. Let me know how it goes. I have wasted so much money on vitamins.  Thanks for the reply. Any brands you recommend? For b12?

Celiacmanbill Explorer
6 hours ago, Raquel2021 said:

Glad is not just me. Let me know how it goes. I have wasted so much money on vitamins.  Thanks for the reply. Any brands you recommend? For b12?

i take jarrows lozenge for my b12 now but i got it from the vitamin shoppe near my house i dont trust amazon anymore im all done dealing with them they sent me potato chips that were nearly expired and it was sold by amazon im all done with them in terms of consumables its just ridiculous what ive been through with them

Raquel2021 Collaborator

I hear you. I will see if I can find them here in Canada 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,274
    • Most Online (within 30 mins)
      7,748

    pgibson417
    Newest Member
    pgibson417
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • numike
      Thank you for the reply In the early 2000's I did not have the endoscopy nor the biopsy I do not have those initial records I have only consulted a GI drs in the USA 
    • trents
      Welcome to the forum, @numike! We sometimes get reports like yours from community members who believe their celiac disease has "gone away." We think there can sometimes be cases of remission but not long term healing and that continued consumption of gluten will eventually result in a relapse. This is the state of our knowledge at this point but there is still a lot we don't know and celiac disease continues to surprise us with new findings on a frequent basis. So, we would not advise you to abandon a strict gluten-free diet. Perhaps you can draw consolation from the fact that at the present time you seem to be able to consume gluten without consequences when in situations where you do not have the option to eat gluten-free. But I would advise you to not generalize your recent experience such that you throw caution to the wind. But I want to go back to what you said about being diagnosed by blood test in the early 2000's. Did you not also have that confirmed with an endoscopy and biopsy of the small bowel lining? Normally, a celiac disease diagnosis is not concluded based on a blood test alone because there can be false positives. What kind of doctor did this testing? Was it done in the U.S. or overseas? In the last few years, it has become common in the U.K. to grant a celiac diagnosis from blood testing alone if the antibody test scores are 10x normal or greater. But that practice has not caught on in the U.S. yet and was not in place internationally in the early 2000's. Do you have a record of the tests that were done, the scores and also the reference ranges for negative vs. positive for the tests?
    • numike
      Check out this celiac story  I was diagnosed early 2000s with the blood test  since then I have for the most part maintained a gluten-free diet  Recently (August 2025) I drove from Southern Illinois to Lake Erie Ohio On the drive back I was extremely hungry and I had a coupon at a hamburger chain and I stopped and forgot to request gluten-free bun etc and quickly consumed two hamburgers. I promptly ate both of them and had absolutely no problem since then I've been eating plenty of gluten  Is my celiac gone?  Insert: No, celiac disease cannot just end because there is no cure for it; however, a strict, lifelong gluten-free diet allows the small intestine to heal and symptoms to go away. To manage the condition effectively, you must strictly avoid all sources of gluten, including wheat, barley, and rye, which are common in the American diet. Sticking to the diet can lead to significant symptom improvement and intestinal healing, but it requires ongoing commitment and monitoring with a healthcare professional  Regarding medical test I had My stools analyzed Giardia Ag Cryptosporidium Ag and they came back negative  I had the lactulose test and it came back high so I'm on two weeks of heavy antibiotics That still has not stopped me from eating gluten. Here's what I think is going on and I hope to have your opinion regarding it  Since I've been gluten-free for so long my intestinal tract has repaired itself consequently anything I eat with gluten now just bounces right off with no damage to my gut  however  when I asked AI what was going on the reply was celiac has not gone away and  if I continue to eat gluten I'm going to have problems   I look forward to your sage advice as to what the heck is going on with me Thank you for reading Mike 09112025
    • Scott Adams
      I agree, and generally it means that it isn't working in a high enough percentage of participants to continue pursuing it.
    • RMJ
      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
×
×
  • Create New...