Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Strictly Gluten Free for 6 years with an elevated TTG

Sevans10
 Share

Recommended Posts

Sevans10 Newbie
Sevans10
Posted

Hi there!  My daughter was diagnosed with celiac disease 6 years ago.  We have followed a strict diet with her, eat out only at a few places we feel confident with.  Big kids left for college a few years ago and our house has become fully gluten-free.  She is 15 but not a risk taker/anxious about what she eats.  Her TTG was HIGH upon diagnosis, and it has gradually come down but the lowest she got was 45.  Today she is 51.  She is growing and some occasional symptoms (she says maybe once every few months stomach pains and nausea).  Anyone else have this experience?  I'm hoping they rescope her just to see if she is healed?  Thoughts? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

Does your daughter eat in restaurants? Studies have shown that even ones with gluten-free menus often serve contaminated food.

Also, there is some research that shows that cow's milk may also increase tTG levels in those who are sensitive:

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,498
    • Most Online (within 30 mins)
      7,748
    Rated H
    Newest Member
    Rated H
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Kan-101

      By Scott Adams · Posted

      It looks like their most recent clinical trial just finished up on 5-22-2025.
    • Fabrizio
      Kan-101

      By Fabrizio · Posted

      Dear Scott,  please check the link https://clinicaltrials.gov/study/NCT05574010?intr=KAN-101&rank=1 What do you think about it?
    • Scott Adams
      Kan-101

      By Scott Adams · Posted

      KAN‑101 is still very much in development and being actively studied. It has not been dropped—rather, it is advancing through Phases 1 and 2, moving toward what could become the first disease‑modifying treatment for celiac disease. https://anokion.com/press_releases/anokion-announces-positive-symptom-data-from-its-phase-2-trial-evaluating-kan-101-for-the-treatment-of-celiac-disease/ 
    • knitty kitty
      Still unsure.....

      By knitty kitty · Posted

      Thiamine interacts with all the other B vitamins.  Thiamine and B 6 make a very important enzyme together. With more thiamine and other vitamins available from the supplements your body is absorbing the ones you need more of.  The body can control which vitamins to absorb or not.  You're absorbing more and it's being transported through the blood.   It's common to have both a Thiamine and a Pyridoxine deficiency.  Keep taking the B Complex. This is why it's best to stop taking supplements for six to eight weeks before testing vitamin levels.  
    • badastronaut
      Still unsure.....

      By badastronaut · Posted

      Yes I took a supplement that had B6 in it, low dosage though. I've stopped taking that. B1 doesn't affect other B vitamin levels? 
×
×
  • Create New...