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Feeling Sick All The Time

Emma R.
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Emma R. Apprentice
Emma R.
Posted

I've been on a gluten-free diet for over a month now. And I've noticed a big difference in how I've been feeling. I've been eating all the same foods since I've been dealing with some other food intolerances. But the past few days I've been feeling very bad, no matter how careful I am. I'm not sure what the difference is. I'm eating the same foods as before and I even deep-cleaned my kitchen thinking that may be it. But after each meal, I get the symptoms all over again. Any thoughts or similar experiences? Not sure if its a flare-up that needs a few days to calm down or if I've overlooked something. 

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cnazrael89 Enthusiast
cnazrael89
Posted

Are you diagnosed Celiac? Your post doesn't mention why you are gluten free but mentions "other food Intolerances". I was diagnosed celiac 6 months ago and initially going gluten free helped my symptoms immensely. However, about 4 months in, I started to have re-occurring symptoms and actually feeling even worse than before. I had some labs drawn and it showed an unusually high eosinophil count which prompted an allergist referral. Apparently, I have developed many new food allergies which I am now assuming is the cause of all of the new/old symptoms to start up. I hope this is helpful in some way. Take care

Scott Adams Grand Master
Scott Adams
Posted

This article may include some things that could help:

 

  • 1 month later...
knitty kitty Grand Master
knitty kitty
Posted

@Emma R.,

How are you doing?  

Have your symptoms improved? 

Have you tried a low histamine diet?  

Are you supplementing with vitamins and minerals?

Hope you're doing better!

Emma R. Apprentice
Emma R.
Posted
  • Author

I am doing better! I am not completely back to normal yet. But I do have a thyroid problem that needed to be regulated as well. My symptoms have improved on a day to day basis. But if I do get glutened they are more severe than before.  I also have started noticing as it heats up I'm having some heat intolerance. Not sure if that is from the celiac and will go away? Hopefully so. I am taking iron and a complex B 12 vitamin. As well as some vitamin d here and there. I do have trouble with accidentally consuming gluten still. I am very careful about what I eat and cautious. But it seems about once every 2-3 weeks at some point I get glutened. I have a friend who has had celiac since she was 3 (she's now 20). And some food she eats, like McDonalds fries seem to be ok for her but I still get sick. So could i just be more sensitive? And is it recommended to not eat out for a certain period of time? I am trying to be patient as I'm learning it all but I don't wait to cause more damage. 

On 5/3/2023 at 5:27 AM, cnazrael89 said:

Are you diagnosed Celiac? Your post doesn't mention why you are gluten free but mentions "other food Intolerances". I was diagnosed celiac 6 months ago and initially going gluten free helped my symptoms immensely. However, about 4 months in, I started to have re-occurring symptoms and actually feeling even worse than before. I had some labs drawn and it showed an unusually high eosinophil count which prompted an allergist referral. Apparently, I have developed many new food allergies which I am now assuming is the cause of all of the new/old symptoms to start up. I hope this is helpful in some way. Take care

I am a diagnosed celiac as of March. I have had some food allergies in the past so this may be a good option for me to explore! Thank you!

knitty kitty Grand Master
knitty kitty
Posted

@Emma R.,

So happy to hear you're doing better!

Are you taking a B Complex or are you taking just B12?  Big difference.  You need all eight B vitamins, not just B12.  This is a good one.

https://www.lifeextension.com/vitamins-supplements/item01945/bioactive-complete-b-complex?gclid=EAIaIQobChMIy7e2yK3p_wIVbWpvBB2Mwg0oEAAYASAAEgKx3PD_BwE

 

McDonald's fries are not safe for Celiac people because they have wheat and dairy used in the flavoring.  See...

https://www.mcdonalds.com/us/en-us/product/small-french-fries.html#accordion-c921f9207b-item-283bee7dbd

"Allergen Information

French Fries

Ingredients: Potatoes, Vegetable Oil (canola Oil, Corn Oil, Soybean Oil, Hydrogenated Soybean Oil, Natural Beef Flavor [wheat And Milk Derivatives]*), Dextrose, Sodium Acid Pyrophosphate (maintain Color), Salt. *natural Beef Flavor Contains Hydrolyzed Wheat And Hydrolyzed Milk As Starting Ingredients.

Contains: Wheat, Milk."

 

Have you tried a low histamine diet to help with food sensitivity?

https://www.verywellhealth.com/what-is-a-low-histamine-diet-4694529

Following a low histamine diet helped me along with extra Thiamine Vitamin B 1.  Thiamine helps the body get rid of histamine.

Extra thiamine helps with heat intolerance and helps the thyroid function better.

I take Benfotiamine, a form of thiamine that has been shown to promote intestinal healing.

https://www.lifeextension.com/vitamins-supplements/item00920/benfotiamine-with-thiamine?gclid=EAIaIQobChMIxbDexa7p_wIVDjjUAR0dwAvuEAQYASABEgI82PD_BwE

Keep us posted on your progress!

Scott Adams Grand Master
Scott Adams
Posted

Just FYI McDonald's fries have never tested positive for gluten, and Hydrolyzed Wheat is considered gluten-free, especially in the levels used in their beef flavor. Of course there are other fast food fries you can get without Hydrolyzed Wheat, but this article and its comments have more info:

 

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knitty kitty Grand Master
knitty kitty
Posted

Thanks for clearing that up, @Scott Adams!

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    • knitty kitty
      Getting sick much more often

      By knitty kitty · Posted

      Hello there! @Jordan Carlson , you said "Now the last 3 ish years I have been sick more than I ever have been in my life. Could it be my immune system was so tired/fatigued prior to diagnosis that it just wouldnt turn on anymore? And now that my stress and inflammation is down its functioning stronger?" I think you may have that backwards.  Your immune system was running in high gear with undiagnosed Celiac Disease, and therefore fighting infections like colds and viruses before you had any symptoms.  Now that you've gone gluten free, your immune system may be depressed and not able to mount a strong immune response to colds and viruses because it is running low in essential vitamins and minerals needed for that immune response.  Hence you have more infections and worse symptoms now.   For strong immune responses, our bodies need vitamins and minerals that may be lacking on the gluten free diet.  Supplementing with essential nutrients boosts our ability to absorb the vitamins and minerals while our intestinal villi are healing in the first few years of recovery.   Many are low in vitamins and minerals that help our immune system, like Vitamin D, Vitamin C, zinc, iron, the eight B vitamins, especially Thiamine, selenium, and magnesium.   Have you talked to your doctor and nutritionist about supplementing with vitamins and minerals?   Correcting nutritional deficiencies is frequently overlooked after diagnosis.  
    • Jordan Carlson
      Getting sick much more often

      By Jordan Carlson · Posted

      @trents I do take all the recommended vitamins and excersize regularly. Basically do all things labeled as a healthy lifestyle haha. Thats why I was thinking more this is my immune system now having the energy to fight viruses rather than being too stressed out as I have heard that it is a common thing when your body is over stressed due to underlying autoimmune diseases
    • trents
      Getting sick much more often

      By trents · Posted

      Jordan Carlson, Wheat flour is fortified with vitamins ("enriched") where as gluten free facsimile flours are not. So when you eliminate wheat flour from your diet you may lose a significant source of nutrition. At the same time, gluten-free prepackaged foods are practically devoid of vitamins and minerals, consisting mostly of highly processed high carbohydrate grain substitutes. Lots of rice flour and tapioca. Have you compensated by adding in some high quality gluten free vitamin and mineral supplements? We typically recommend this for new celiacs, especially at the front end of recovery before there has been very much healing of the small bowel villous lining and nutritional absorption is still poor. Edit: I edited my other post to direct it to Sanna King's post.
    • Jordan Carlson
      Getting sick much more often

      By Jordan Carlson · Posted

      Hey there @trents. I wish I could edit my original post. I am talking about getting a cold way more often, not gluten poisoning.
    • trents
      Getting sick much more often

      By trents · Posted

      Reply to Sanna King: As you have withdrawn gluten from your diet you have lost all tolerance to it that you had when consuming it on a regular basis. This is normal. Not everyone experiences it but it is common. It has been my experience as well. When I was consuming gluten every meal every day for years after the onset of celiac disease but before diagnosis I would experience mild GI symptoms like a little occasional diarrhea. After being gluten free for a significant time, any major exposure to gluten would make me violently ill. Hours of severe cramps and vomiting followed by hours of diarrhea. Like when my wife made me gluten-free biscuits and made herself wheat flour biscuits and I got them mixed up and ate a couple. I am not a super sensitive celiac in the sense of being made ill by small amounts of cross contamination but if I get a significant exposure like I just described it is awful. 
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