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A Dx - Finally!

McNish
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McNish Apprentice
McNish
Posted

Finally,  got into a GI (thankfully, extremely knowledgeable GI) and dx me w/ Celiac.  Such a relief to have a Dr. actually LISTEN to me. It's confirmation that all these symptoms aren't "in my head". Based on my positive genetic test, symptoms, heritage (this one threw me off a bit) & an occasional rash I get between my fingers (that I had no idea was celiac related) there was no need for a gluten challenge or endoscopy.  Now the hard work begins - cross contamination.  I can't say I was diligent before but now....new ball game.   

BTW, he highly recommended Celiac.Com to me - He said this place has a wealth of information & "the place" for celiacs.  So there's that! :)

So happy I found this place.  I've learned so much about everything celiac.  I'd be lost w/o this site.  So....THNAK YOU! 

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Nick Cheruka Contributor
Nick Cheruka
Posted
  On 8/18/2023 at 2:47 PM, McNish said:

Finally,  got into a GI (thankfully, extremely knowledgeable GI) and dx me w/ Celiac.  Such a relief to have a Dr. actually LISTEN to me. It's confirmation that all these symptoms aren't "in my head". Based on my positive genetic test, symptoms, heritage (this one threw me off a bit) & an occasional rash I get between my fingers (that I had no idea was celiac related) there was no need for a gluten challenge or endoscopy.  Now the hard work begins - cross contamination.  I can't say I was diligent before but now....new ball game.   

BTW, he highly recommended Celiac.Com to me - He said this place has a wealth of information & "the place" for celiacs.  So there's that! :)

So happy I found this place.  I've learned so much about everything celiac.  I'd be lost w/o this site.  So....THNAK YOU! 

Expand Quote  

Hi, I’m glad you got some answers! I have to ask why your GI dr did not want to do a endoscopy with biopsy to confirm celiacs? 

Nick Cheruka Contributor
Nick Cheruka
Posted
  On 8/18/2023 at 4:04 PM, Nick Cheruka said:

Hi, I’m glad you got some answers! I have to ask why your GI dr did not want to do a endoscopy with biopsy to confirm celiacs? 

Expand Quote  

Celiac for over 20yrs confirmed with biopsy from endoscopy, blood work and genetic test! The endoscopy would show villous atrophy caused by your autoimmune system attacking the villous lining of your intestines when consuming Gluten! Good Luck☘️Stay Strong💪

McNish Apprentice
McNish
Posted
  • Author

I'm assuming due to the severity of my symptoms.  I ticked alot of the boxes - early onset osteopenia, anemia, elevated liver enzymes (which climb sky high when I eat gluten) nausea, severe join pain,  the rash.... just to name a few. I tried the challenge and couldn't make it 2 weeks, let alone 6 to 8. He said there's no need for the endoscopy - the rash is enough to dx.  I'm good with it.  

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