Discoid Eczema

[manaja]

Hi I was diagnosed Celiac several years ago 2015 , since then I’ve been on a strict gluten free diet , I’ve managed to get my ttg iga down to 2.8 last August , this year it was 4.0 , the reference range in uk at my particular lab is above >14.9 is positive so I must be doing something correctly! But I’ve started with what looks like discoid eczema , I’m in my late 50s , can this be part of being a Celiac ? I’ve also not managed to put anymore weight on since diagnosis & it’s still very much a struggle to keep any weight I have , thanks in advance for any replies 

[Raquel2021]

1 hour ago, manaja said:

Hi I was diagnosed Celiac several years ago 2015 , since then I’ve been on a strict gluten free diet , I’ve managed to get my ttg iga down to 2.8 last August , this year it was 4.0 , the reference range in uk at my particular lab is above >14.9 is positive so I must be doing something correctly! But I’ve started with what looks like discoid eczema , I’m in my late 50s , can this be part of being a Celiac ? I’ve also not managed to put anymore weight on since diagnosis & it’s still very much a struggle to keep any weight I have , thanks in advance for any replies 

Hi there 

I dont have an answer for the ezcema question but share your frustration with not being able to put weight on eventhough I eat enough.  Before diagnosis I was 154 pounds today I am 136 pounds.  The same weight I was in my twenties but being in my forties I don't want to be that skinny.  I am about 5.5 feet.

[trents]

2 hours ago, manaja said:

Hi I was diagnosed Celiac several years ago 2015 , since then I’ve been on a strict gluten free diet , I’ve managed to get my ttg iga down to 2.8 last August , this year it was 4.0 , the reference range in uk at my particular lab is above >14.9 is positive so I must be doing something correctly! But I’ve started with what looks like discoid eczema , I’m in my late 50s , can this be part of being a Celiac ? I’ve also not managed to put anymore weight on since diagnosis & it’s still very much a struggle to keep any weight I have , thanks in advance for any replies 

Both are autoimmune conditions and it is a well known fact that AI diseases tend to cluster. Once you get one, you can expect others to come along. Concerning the weight issue, have you had a follow-up biopsy to check the condition of the small bowel villi? There is something called refractory celiac disease in which villous damage continues even after withdrawing gluten. 

[manaja]

Hi thanks for the reply , no not had a follow up biopsy , I thought as I’ve no gastrointestinal symptoms things must be ok especially with my ttg levels being well into the normal zone , it says that there’s no serum evidence of celiac disease that’s what the blood results read , I’ve e heard of refractory Celiac disease but not given it any real thought 

[trents]

It's pretty rare, actually. Most cases of RCD turn out to actually be incomplete elimination of gluten. Are you on any vitamin and mineral supplements to correct nutritional deficenies? How many calories are you consuming daily on the average? Do you rely heavily on commercially prepared gluten foods? They are largely devoid of nutrition because there is no requirement they be fortified as are mainstream flours and grains. At least this is true in the USA.

Edited September 15, 2023 by trents

[manaja]

Hi thanks again for the reply , no I don’t take any vitamin supplements or anything, my calories differ daily , I eat a lot of rice & pasta all gluten free , the wife makes a lot of meat meal which we have around 3 x week , my alcohol of choice is red wine , I don’t have any symptoms but definitely frustrating that I can’t put weight on still , I posted back in 2018 that I really struggled to keep any weight on back then , both my brothers are Celiac but since they’ve been on gluten free diets they have to watch their weight as they can put it quite easily, I’m complete opposite, I had some bloods done the other month high & low end of normal as is mostly my case 

[manaja]

16 hours ago, Raquel2021 said:

Hi there 

I dont have an answer for the ezcema question but share your frustration with not being able to put weight on eventhough I eat enough.  Before diagnosis I was 154 pounds today I am 136 pounds.  The same weight I was in my twenties but being in my forties I don't want to be that skinny.  I am about 5.5 feet.

Yes I’m the same ,  I was diagnosed in 2015 then I was 11stone 6lb , in 2018 I dropped down to 11stone 0lb , it’s quite frightening, I eat well strict gluten free diet ,  I’m 5.7 feet , O don’t know the answer but the vague weight loss must be going somewhere, how long a period did you lose your weight ?

[Raquel2021]

8 hours ago, manaja said:

Yes I’m the same ,  I was diagnosed in 2015 then I was 11stone 6lb , in 2018 I dropped down to 11stone 0lb , it’s quite frightening, I eat well strict gluten free diet ,  I’m 5.7 feet , O don’t know the answer but the vague weight loss must be going somewhere, how long a period did you lose your weight ?

I was diagnosed in December 2020. I was around 150 lbs maybe a bit more then I lost about 10 lb 12 lbs then gain 4 lbs 1 year after and now I have lost another 5 lbs and eat a lot and do not wish to lose weight. I am also dairy free since I have Hashimotos and was trying to control that as well.