I need help.

[lesley bailey]

I have long term IBS. Now have a bad overgrowth of bacteria, having treatment for this, but I am still very bad after 1 month. 

[trents]

Welcome to the forum @lesley bailey!

Do you have or have you been checked for celiac disease? Just wondering why you posted on a forum for celiac disease.

[knitty kitty]

@lesley bailey, welcome to the forum!

Many people diagnosed with IBS can actually be misdiagnosed Celiac patients.  I was told I had IBS more than a decade before my Celiac diagnosis. Have you had any specific tests for Celiac Disease?  DNA test, endoscopy and biopsy, or antibody testing?  Testing for Celiac Disease should be done before you remove gluten from your diet.  If you remove gluten, you stop making the anti-gluten antibodies (tTg IgA, DGP IgG) that blood tests look for, and intestinal healing begins which could cause uncertain biopsy results.  But DNA doesn't change whether consuming gluten or not.  I had negative blood tests because I was so ill for so long and had other medical conditions (anemia, diabetes, nutritional deficiencies, chronic inflammation) that caused seronegative blood test results.  But I have two genes for Celiac Disease.  

Small Intestinal Bacterial Overgrowth occurs when bacteria from the colon and large intestine migrate to the small intestine where they are not meant to be.  High fructose corn syrup provides a biofilament mesh which allows the bacteria to climb up into the small intestine. 

SIBO happens with high carbohydrate diets.  For every extra 1000 calories of carbohydrates, more Thiamine is needed (100 - 500 mg).  Thiamine is required to process carbohydrates and turn carbohydrates into energy for the body to utilize.  If we don't have sufficient thiamine, the undigested carbohydrates feed the bacteria, and encouraging bacterial overgrowth.  

Thiamine also is instrumental in controlling SIBO and keeping those bacteria where they belong.  Thiamine has antibacterial and antiviral properties.  

Drugs, like antibiotics to control SIBO, can break down Thiamine making it unusable to our body, and precipitating a subclinical thiamine deficiency.

I chose a Paleo diet to deal with my SIBO.  By cutting out carbohydrates and high fructose corn syrup, the bad SIBO bacteria starve and die off. 

I also supplemented with Benfotiamine which has been scientifically studied and shown to promote intestinal healing.  I also took a B Complex with all eight essential B vitamins, magnesium (required to make life supporting enzymes with Thiamine), Vitamin C, and Vitamin D.  Vitamin D regulates the immune system, reducing inflammation.  

Hope this helps!

[Wheatwacked]

     The result of undiagnosed Celiac Disease is Malabsorption Syndrome where the small intestine villi are damaged and as a result causes multiple vitamin and mineral deficiencies.  IBS could be a symptom of Celiac Disease, not just some poorly understood ("The pathophysiology of IBS is not well understood and is currently referred to as multifactorial—attributable to gut dysmotility, visceral hypersensitivity, dysfunction of the brain-gut axis, immune activation, changes in gut microbiome, and food sensitivities.") mysterious disease.

I would suggest that after testing for Celiac Disease , even if that testing says you do not have Celiac Disease, you try a Gluten Free Diet for at least three months, paying particular attention to your vitamin and mineral intakes.  Wheat flour has an omega 6 to omega 3 ratio of 22:1, where a ratio of 3:1 is considered inflammatory and the typical western diet is between 14:1 and 20:1.  Just eating gluten free will lower your inflammation.  Gluten free does not mean healthy unless you choose a nutrient rich diet with vitamin and mineral boosters to get you well above the mininum RDAs.   As knitty  kitty pointed out, it can take years of misdiagnosis before Celiac Disease is proven to the doctors.  Most of the nutrition in wheat, rye and barley products is from fortification and supplementation anyway.  On their own they are not essential, contrary to popular belief.

Association between irritable bowel syndrome and micronutrients: A systematic review  extracted from the above review:

• At baseline, intake of vitamins B1, B2, B6, B9, calcium, iron, magnesium, and zinc in patients with IBS were significantly lower compared with dietary reference values.
• Compared with healthy controls, intake of vitamin A, B2, B9, B12, calcium, and zinc were reduced as well.
• The results revealed that across the board, serum levels of vitamin D were lower in IBS patients, 
•  Serum levels of zinc were also lower in patients with IBS compared with controls.
• Vitamin D supplementation was shown to alleviate IBS symptoms such as abdominal pain, distension, and overall gastrointestinal symptoms compared with placebo.

 

 

[lesley bailey]

On 1/11/2024 at 6:13 PM, trents said:

Welcome to the forum @lesley bailey!

Do you have or have you been checked for celiac disease? Just wondering why you posted on a forum for celiac disease.

Yes I have had all the tests at hospital and I am definitely Celiac and lactose intolerant.