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York tests

Michmap
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Michmap Rookie
Michmap
Posted

Hi. I've been diagnosed with celiac just over a year ago due to very high blood count of antibodies. I've come off gluten and my symptoms have improved after a time but not completely gone. I still have pain (maybe trapped wind) under my ribcage, lethargy, low mood and aching joints. I know some of this could be other disorders but the pain on my ribs doesn't seem to be. 

I am wondering if it is worth doing a York test (I'm in the UK) for other allergies etc? Has anyone done one? My consultant is doing another blood test but I don't think that includes as much detail. Does anyone know? I'm trying to avoid the camera down my throat as I strongly suspect my condition started because of an operation. I'd prefer to avoid more trauma to my body. 

 

Thanks 

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trents Grand Master
trents
Posted

Welcome to the forum, @Michmap!

If I were you I'd look into other food intolerances in addition to gluten. This is very common in the celiac community. You cut out gluten and see definite improvement but not total. Please check this recent thread out that deals with this: 

It's a good idea to remember that celiac disease represents an immune system that has become dysfunctional with regard to food and that it seldom stops with just one food. Gluten may be the main culprit but there are typically other contributors.

Michmap Rookie
Michmap
Posted
  • Author

Thank you. Yes, I want to do that. I'm just wondering if the York tests are a way to do that here in the UK. Someone on there mentioned some tests that aren't available to us here. I wonder if anyone knows anything about them and whether they are likely to find anything beyond what my consultant does. He is only looking at the tTg levels as far as I know. 

Scott Adams Grand Master
Scott Adams
Posted

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

If you include oats in your diet, the first step might be eliminating them for a few weeks.

Michmap Rookie
Michmap
Posted
  • Author
59 minutes ago, Scott Adams said:

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

If you include oats in your diet, the first step might be eliminating them for a few weeks.

Thanks - yes, oats is already out, but I'll give the others a try one at a time. 

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