Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

25 year biopsy confirmed/ate pizza with no ill effects?

Linedancegal
 Share
Go to solution Solved by knitty kitty,

Recommended Posts

Linedancegal Newbie
Linedancegal
Posted

Hello! I am a 25 year biopsy confirmed female. 2 nights ago my husband and I both got pizza, one regular for him and one gluten free for me. Yesterday we ate the leftovers, and afterward, I realized that I had eaten 3 pieces of the regular pie! I was prepared to spend the next day (my usual reaction time) being sick and sticking close to a bathroom. It's now 9:30 pm, and I have had no ill effects. How is this even possible? Can your body change enough over the years that I could no longer have celiac? I am totally shocked that I am not sick. Thanks for any input.

Pat V

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Solution
knitty kitty Grand Master
knitty kitty
Posted
  • Solution

Welcome to the forum, @Linedancegal,

No, you still have Celiac Disease.  You just have been on a gluten free diet successfully for so long that your body's immune system isn't reacting strongly YET.  

It can take many exposures consistently to get your immune system back to making the quantity of antibodies necessary for those typical symptoms.

Remember gluten challenges insist you eat ten grams of gluten daily for several weeks to produce the damage seen in endoscopy of small intestine and antibodies in the blood.  

Don't be fooled by no reaction today.  Don't think you can start eating gluten again.  Every exposure will stimulate the immune system.  

Hope this helps!

trents Grand Master
trents
Posted

We do hear of cases of remission but they generally eventually revert back. I wouldn't push your luck.

shadycharacter Enthusiast
shadycharacter
Posted
9 hours ago, Linedancegal said:

Hello! I am a 25 year biopsy confirmed female. 2 nights ago my husband and I both got pizza, one regular for him and one gluten free for me. Yesterday we ate the leftovers, and afterward, I realized that I had eaten 3 pieces of the regular pie! I was prepared to spend the next day (my usual reaction time) being sick and sticking close to a bathroom. It's now 9:30 pm, and I have had no ill effects. How is this even possible? Can your body change enough over the years that I could no longer have celiac? I am totally shocked that I am not sick. Thanks for any input.

Pat V

Fermentation breaks down some of the gluten in wheat. Nowhere enough for a wheat dough to become gluten free, but the gluten may be significantly reduced. I think some pizzerias make the dough the day before and leave it overnight. The longer the microbes are acting on the flour, the better.

trents Grand Master
trents
Posted

@shadycharacter, did you mean to reply to another post about sourdough bread? The present thread isn't about that.

shadycharacter Enthusiast
shadycharacter
Posted
26 minutes ago, trents said:

@shadycharacter, did you mean to reply to another post about sourdough bread? The present thread isn't about that.

Lactic acid bacteria start to develop as soon as flour and water are mixed, so I assumed that in a yeast dough with long proofing time there could be some effect of fermentation and gluten break down. 

Scott Adams Grand Master
Scott Adams
Posted

The whole point of the gluten-free diet is to send the disease into remission. For some this process means strong reactions when exposed to even trace amounts of gluten, while for others it seems they have little to no reactions when exposed to larger amounts of gluten. In either case, research has shown that repeated gluten exposure will trigger the autoimmune reaction that leads to inflammation and various damage, as well as to possible additional autoimmune diseases. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Crystal H Newbie
Crystal H
Posted

Celiac will never go away, your reactions may differ from time to time.  Even if you don’t get sick, it is still doing damage.
I want to know where you got gluten-free pizza so good that you didn’t notice the difference between the gluten-free and the regular until after you ate 3 pieces!

Linedancegal Newbie
Linedancegal
Posted
  • Author

Hello Crystal, We actually got the pizzas from Pat's Pizza in Cinnaminson. And yes, you are correct, there is a definitely a difference. I totally forgot that he also had pizza, so I didn't think twice about grabbing the pizza box and just eating it. I knew that something was different (maybe the fact that it tasted good, should have been a good clue?! lol), but it just didn't click that it was an entirely different pizza until I went to put the box away, and saw the other box! Then I knew immediately what I had done, and expected to be very sick the next day, as that is when I usually react. I was shocked when I got no reaction, I usually do when being glutened by mistake. I have NEVER cheated on the gluten-free diet on purpose, so I guess I've been doing a pretty good job of staying gluten-free! Thanks for your response.

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,754
    • Most Online (within 30 mins)
      7,748
    irishchung
    Newest Member
    irishchung
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • MagsM
      Inflammation and Menier’s disease link?

      By MagsM · Posted

      Thank you so much for this in depth analysis. I am currently taking Vit D3/K2 5000IU daily.i started taking a flushing Niacin but foolishly took a 500mg tab and nearly passed out! I have just ordered a gut microbiome genome test and it will be interesting to see what my current balance of microbes are. After I finish diagnosis I will definitely go gluten free. Diagnosis will inform exactly how strict I’ll need to be regarding cross contamination etc. my focus will be on healing the gut. I have also been focusing on the oral microbiome - cutting out FL and using more natural products as well as daily oil pulling. I read from some of your other forum entries about Benfothiamine and I’ll definitely order that. I’ll make sure my doc orders more detailed vitamin and mineral panel plus total IGA as well as the DGP-IGA and DGP-IGG tests. We will see if I can get the endoscopic biopsy done. Do you think I should request Vitamin B shots to get me started?  My daily vitamin protocol will likely be VitD/K2 5000IU, Benfothiamin 300x2, Niacin (flushing) 50mg working up to 300mg. I also take a EPA/DHA as well as some vascular support (Arterosil HP and Vascanox HP) as well as Magnesium at night. Which B complex brand do you like? I will see what the gut microbiome test comes back with. I’m sure they will try to sell me pre/probiotics and maybe some digestive enzymes. What are you thought on those? I’m curious if you managed to go into full remission from your Ménière’s disease? Thank you so much for your thoughtful insight. I know that building back up my gut health and immune health will help in so many ways as well as protecting me from many other major diseases as I go into my 60s and beyond. 
    • Scott Adams
      Any bad experience with King Arthur Gluten-free bread flour

      By Scott Adams · Posted

      You are right! The logo the have on their packages got me confused--it looks like they are less than 20ppm, not certified GF. Thanks for catching that! My brain also zeroed in on this "less than 10ppm" but I should have seen the rest...
    • Wheatwacked
      Still unsure.....

      By Wheatwacked · Posted

      Zinc glyconate lozenges (Cold Eeze) helps fight off viral respiratory infections by coating the mucous membrane cells to protect them from virus.  Zinc is an antiviral essential mineral. Choline deficieicy can be the cause of Non Alcoholic Fatty Liver Disease.  It is estimated by some experts that less than 10% eat the minimum RDA of around 450 mg.  It has also been connected to gallbladder disease.  Brain fog and high homosystein blood level is an independant indicator of cardiovascular disease. Eggs and red meat are the primary sources.  Three eggs or 10 cups of cooked brocolli a day.  Low vitamin D is a common denominator of autoimmune disease.  Is it a contributing factor or a result? I think that low vitamin D is maybe the main contributing factor.  Low vitamin D allows the immune system to run amuck. I would like to point out the many diagnosed with Celiac Disease went through several misdiagnoses, like gall bladder disease, and were repeatedly tested negative and then one day tested positive. Regardless of your diagnosis, you should avoid gluten, you mention it in your first post : "When I eat gluten I get a lot of mucus with my stool and most of the times it’s quite thin. As soon as I take gluten away from my diet my stool becomes normal". It can take six months to several years to heal completely.  How long I believe is directly related to how quickly you identify deficiencies and correct. Essential to my recovery:  Thiamine, 10,000 IU vitamin D3 a day, maintaining 25(OH)D at 80 ng/dl (200 nmole/L), 600 mcg Liquid Iodine, Phosphatidyl Choline.  And of course: Gluten Free.
    • RMJ
      Any bad experience with King Arthur Gluten-free bread flour

      By RMJ · Posted

      Not all of King Arthur’s gluten free flours and baking mixes are certified gluten free. This bread flour is not. 
    • knitty kitty
      Still unsure.....

      By knitty kitty · Posted

      Bump up your thiamine dose!  You can take more if you don't feel anything after the first one.  Must needs getting to that 500mg. We need more thiamine when we're fighting an infection.  Zinc will help fight infections, too, as well as Vitamin C. They all work together. Hope you feel better!
×
×
  • Create New...