Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestive Issue?


Ginger38

Recommended Posts

Ginger38 Rising Star

Sorry if this is too much information but I wanted to see if anyone on here has any insight, I seem to be having issues digesting foods. It’s like it just comes right out in my poo. If I eat pizza or spaghetti sauce it’s like I have diarrhea and it’s like I’m just pooping out the sauce. If I eat salad it comes out like I haven’t chewed it. Those are just a few examples. Is this common in celiac? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Yes, this can be common in celiac disease. Is your diet 100% gluten-free? How long have you been gluten-free? When you consume gluten, it can damage the lining of your small intestine, leading to malabsorption of nutrients and causing symptoms like diarrhea and undigested food in your stool. To me it sounds like your intestinal damage hasn't healed.

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

Ginger38 Rising Star

Thank you for this information! This opens my eyes to a lot. My last antibody test was still positive and I am thinking if I remember correctly that is also an indicator of gluten ingestion and intestinal damage , is that correct??
have been on this roller coaster  of trying to be gluten free 100% of the time for several years now. Unfortunately I don’t seem to be doing the best with the diet as I keep getting glutened or making the wrong choices. 
I noticed this issue I posted about and it has been pretty severe again , and thought it might have something to do with celiac and gluten and intestinal damage which is why I posted. I do have trouble with eggs as well as corn for sure along with the other things I mentioned. 
how long are we talking for healing or even beginning to heal and is there anyway to speed up the  healing process?? And reduce this miserable belly I have? 

knitty kitty Grand Master
(edited)

I found following the Autoimmune Protocol Diet the best thing for me.  The AIP diet has you remove all the foods from ones diet that can be irritating to the gastrointestinal tract.  Eating those non-irritating foods for several weeks allows the intestines to heal, then other foods are slowly reintroduced.  Find baseline foods that your body can tolerate, allow healing time, then add in other foods slowly to make sure there's not a reaction.  

I also chose low histamine foods.  Some foods contain more histamine than others.  Histamine is produced by the body when there's inflammation.  So high histamine foods and high histamine from inflammation can overwhelm our body and make us sick.  Eating low histamine foods allows time for the body to clear that histamine, heal the intestines and lower inflammation.  No eating out.  No processed packaged foods.  Restaurant foods and processed foods are high histamine, too.

The AIP diet recommends Bone Broth and Fermented Foods (like sauerkraut and kefir, but these are very high in histamine, so I avoided them).  I also avoid nightshades (tomatoes, potatoes, peppers and eggplant) because they cause leaky gut syndrome.  

I also took vitamins and minerals because the gluten free diet can be low in essential nutrients.  A B Complex, Benfotiamine, minerals like calcium, magnesium and zinc are important.  Benfotiamine Thiamine Vitamin B1 is especially helpful in healing the intestinal system.  

The AIP diet cuts out many carbohydrates.  This starves out the SIBO bacteria that causes a big bloated belly.  

Sounds really restricted and severe, I know, but I figure six weeks on the AIP diet is better than six weeks recovery from major surgery.  The mental shift to thinking "this food is my medicine" is helpful.  

Hope this helps!

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

 

Edited by knitty kitty
Add link
Scott Adams Grand Master
5 hours ago, Ginger38 said:

Thank you for this information! This opens my eyes to a lot. My last antibody test was still positive and I am thinking if I remember correctly that is also an indicator of gluten ingestion and intestinal damage , is that correct??
have been on this roller coaster  of trying to be gluten free 100% of the time for several years now. Unfortunately I don’t seem to be doing the best with the diet as I keep getting glutened or making the wrong choices. 
I noticed this issue I posted about and it has been pretty severe again , and thought it might have something to do with celiac and gluten and intestinal damage which is why I posted. I do have trouble with eggs as well as corn for sure along with the other things I mentioned. 
how long are we talking for healing or even beginning to heal and is there anyway to speed up the  healing process?? And reduce this miserable belly I have? 

Yes, studies show a strong correlation between tissue transglutaminase antibodies (tTg-IgA) levels and villi damage in celiac disease. Higher tTg-IgA levels typically indicate more severe intestinal damage and inflammation, reflecting the extent of villous atrophy. You didn't mention which antibody test you had.

Ginger38 Rising Star
25 minutes ago, Scott Adams said:

Yes, studies show a strong correlation between tissue transglutaminase antibodies (tTg-IgA) levels and villi damage in celiac disease. Higher tTg-IgA levels typically indicate more severe intestinal damage and inflammation, reflecting the extent of villous atrophy. You didn't mention which antibody test you had.

tTg-IgA

Ginger38 Rising Star
6 hours ago, Scott Adams said:

Yes, studies show a strong correlation between tissue transglutaminase antibodies (tTg-IgA) levels and villi damage in celiac disease. Higher tTg-IgA levels typically indicate more severe intestinal damage and inflammation, reflecting the extent of villous atrophy. You didn't mention which antibody test you had.

Is there anything to do to speed up the healing process or reduce this miserable gluten belly I have? I can’t eat much of anything right now 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

This article, and the comments below it, may be helpful:

 

 

Ginger38 Rising Star
On 6/5/2024 at 4:29 PM, knitty kitty said:

I found following the Autoimmune Protocol Diet the best thing for me.  The AIP diet has you remove all the foods from ones diet that can be irritating to the gastrointestinal tract.  Eating those non-irritating foods for several weeks allows the intestines to heal, then other foods are slowly reintroduced.  Find baseline foods that your body can tolerate, allow healing time, then add in other foods slowly to make sure there's not a reaction.  

I also chose low histamine foods.  Some foods contain more histamine than others.  Histamine is produced by the body when there's inflammation.  So high histamine foods and high histamine from inflammation can overwhelm our body and make us sick.  Eating low histamine foods allows time for the body to clear that histamine, heal the intestines and lower inflammation.  No eating out.  No processed packaged foods.  Restaurant foods and processed foods are high histamine, too.

The AIP diet recommends Bone Broth and Fermented Foods (like sauerkraut and kefir, but these are very high in histamine, so I avoided them).  I also avoid nightshades (tomatoes, potatoes, peppers and eggplant) because they cause leaky gut syndrome.  

I also took vitamins and minerals because the gluten free diet can be low in essential nutrients.  A B Complex, Benfotiamine, minerals like calcium, magnesium and zinc are important.  Benfotiamine Thiamine Vitamin B1 is especially helpful in healing the intestinal system.  

The AIP diet cuts out many carbohydrates.  This starves out the SIBO bacteria that causes a big bloated belly.  

Sounds really restricted and severe, I know, but I figure six weeks on the AIP diet is better than six weeks recovery from major surgery.  The mental shift to thinking "this food is my medicine" is helpful.  

Hope this helps!

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

 

Thank you so much! I recently did an intolerance and sensitivity test

4 hours ago, Scott Adams said:

This article, and the comments below it, may be helpful:

 

 

Thank you so much! I will read that when I get the chance. I recently did an intolerance and sensitivity test. 
I also purchased some gliadin x. Is that something I can take to help right now? 

Scott Adams Grand Master

So as a disclaimer, GliadinX is a sponsor here, but this is not why I post about the product. I think anyone with gluten sensitivity issues, including celiac disease, should, at the very least, be taking 1-2 capsules before any meal that they eat outside their homes--for sure this would mean before eating all restaurant food. Whether or not they take it at home is dependent on their personal situation and sensitivity, and what foods they decide to include in their diet (for example some celiacs do eat foods that are made in a facility shared with wheat).

  • 1 month later...
Ginger38 Rising Star
On 6/7/2024 at 2:27 PM, Scott Adams said:

So as a disclaimer, GliadinX is a sponsor here, but this is not why I post about the product. I think anyone with gluten sensitivity issues, including celiac disease, should, at the very least, be taking 1-2 capsules before any meal that they eat outside their homes--for sure this would mean before eating all restaurant food. Whether or not they take it at home is dependent on their personal situation and sensitivity, and what foods they decide to include in their diet (for example some celiacs do eat foods that are made in a facility shared with wheat).

What is the difference in the GliadinX and like Gluten Cutter? There is a substantial difference in cost so I’m just curious , thanks! I have ordered some of the GliadinX to start using as you mentioned 

Scott Adams Grand Master

As far as I can tell Gluten Cutter doesn't contain the key AN-PEP enzyme, which had undergone a considerable amount of research which has been published that shows that it actually does break down gluten in the stomach. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748

    ChrisMary
    Newest Member
    ChrisMary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.