HLA D08 Alleles DOB1 *0302 Detected

[Suzi374]

My Gp said we will treat me as Coeliac due to this coming back as detected. The other three alleles were not detected. Vitamin D is 20 (I'm in Australia, ferritin undetectable, iron was 4 (I'm vegetarian) and B22 was low but improving significantly with oral B12. He said because I went off gluten as a result of having tingling and numb feet and diminished nerve conduction tests, I could have a gastroscopy after going back into gluten for 4 weeks (I thought it's meant to be 6). He said or we can assume I'm coeliac and just follow gluten free. With these results, do you think it's likely that I am coeliac?  Is it worth doing the gluten challenge?  I also have hashimotos. And low neutrophils but he doesn't think that's related. 

[Paula McVicker]

Hi suzi375

I'm not familiar with your other conditions, but I would say Go for the tests. Get a definite diagnosis once & for all. You can't spend the rest of your life in limbo like this. You need to know for sure in order for you to plan your life better.

Good luck on your journey 

[Suzi374]

Thank you. I think for my children it will be useful and also to assist in sticking to being gluten free it may be useful. It is a bit of limbo actually. I have had a myriad or uncomfortable, weird symptoms for four years. FINALLY, this may be an answer. That is actually a relief, I just wish they did the antibodies before I went off gluten

[Paula McVicker]

Suzi374 I'm glad I was of some help. I've children as well & I know it's frustrating for the whole family when one member is ill with an undiagnosed condition. Definitely get them on board. Education & communication is key to you being successful.