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Is this dermatitis herpetiformis?

Jordan Carlson
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Jordan Carlson Explorer
Jordan Carlson
Posted

Is that what this is? I am newer to the celiac scene lol. Always thought it was eczema that would never end. But makes a lot of sense if it is dermatitis herpetiformis!

IMG_9078.jpeg

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Scott Adams Grand Master
Scott Adams
Posted

It's hard to say from the photo, but if you have celiac disease it could be DH. Do you get tiny, hard, clear blisters in that area, and is it super itchy? 

Jordan Carlson Explorer
Jordan Carlson
Posted
  • Author

sorry, didn't realize the picture was so horrible lol. But yes to all of the above. The small darker areas in the photo are the little blisters on my hand.

Scott Adams Grand Master
Scott Adams
Posted

So if you have DH, it usually means that you are super sensitive to very small amounts of gluten, and to get rid of the DH you need to be 100% gluten-free, and this may mean avoiding eating at restaurants, unless you can be certain the food is 100% gluten-free.

If you have DH you will may also need to avoid foods high in iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful:

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

Jordan Carlson Explorer
Jordan Carlson
Posted
  • Author

Thank you very much for the info Scott! And the seafood and dairy products makes a lot of sense now.  As much as the dermatitis herpetiformis (if that is what it is) would get better, It still has minor flare ups but I do eat a lot of seafood and do have milk here and there so it very well could be that. 

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      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
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