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Best apps for people with celiac

pmarklesparkle
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Go to solution Solved by Hopeful1950,

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pmarklesparkle Newbie
pmarklesparkle
Posted

I was diagnosed with dermatitis herpetiformis and ultimately celiac disease in September 2024.  I am trying to navigate the world with celiac, unsuccessfully, still having dermatitis herpetiformis outbreaks.  Grocery shopping is difficult, shopping for toiletries is nearly impossible. Dining out is also a challenge. Can anyone recommend iPhone apps that will make these easier?  Thanks so much!

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Hopeful1950 Explorer
Hopeful1950
Posted
  • Solution

I use an app called Spoonful where you can scan labels and it will tell you whether it is safe, questionable (and why) and also something you can substitute.  It also makes it easier to see what is on the label.  There are some ingredients that I avoid in addition to gluten.

You can also search the app by a category.  I just searched on "cosmetics and a few things popped up as compliant.  I think the app is mainly focused on food. 

When I first started out reading labels was a nightmare and it took me so much time at the store.  This app has really helped me when I am looking at something new.  They update frequently, and if something isn't in their data base there is an AI function where you can enter the information from the label and it will analyze it right away for you.

I have used an app called Find Me Gluten Free in the past when I am traveling to find restaurants.  People's reviews are very helpful because even when a restaurant claims to be able to accommodate, often people will find out differently and they report it on reviews.

Hope this helps.

pmarklesparkle Newbie
pmarklesparkle
Posted
  • Author

Thank you, Hopeful!  I've downloaded both of those apps and will try them out.  Much appreciated!

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  • Recent Activity

    1. trents
      - trents replied to Pamp8's topic in Dermatitis Herpetiformis
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    2. knitty kitty
      - knitty kitty replied to Pamp8's topic in Dermatitis Herpetiformis
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      Welcome to the forum, @Pamp8, I stopped foods high in iodine, like dairy and eggs, kelp and iodized salt. I take Niacinamide also called Nicotinamide or Vitamin B3. I haven't taken the tetracycline with it. It seems to make the blisters disappear quicker. I also use tallow balm, a cream made from beef fat, which has been used for thousands...
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    • trents
      Dermatitis Herpetiformis

      By trents · Posted

      I would hesitate to recommend tetracycline or any antibiotic as a long term therapy option because of the negative impact it has on the gut biome. I took it for years as a teenager for acne and I'm convinced it was a contributing factor in my having developed celiac disease.
    • knitty kitty
      Dermatitis Herpetiformis

      By knitty kitty · Posted

      Welcome to the forum, @Pamp8, I stopped foods high in iodine, like dairy and eggs, kelp and iodized salt.   I take Niacinamide also called Nicotinamide or Vitamin B3.  I haven't taken the tetracycline with it.   It seems to make the blisters disappear quicker. I also use tallow balm, a cream made from beef fat, which has been used for thousands of years.  It is absorbed into the skin better than creams made from plants.  It helps prevent or lesson scarring.  See the study below. Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide "The combination of tetracycline and nicotinamide can be recommended as a useful therapy for patients where dapsone is not available or for patients who do not tolerate dapsone." https://pubmed.ncbi.nlm.nih.gov/30390734/
    • Scott Adams
      Newly diagnosed, struggling

      By Scott Adams · Posted

      First off, I’m so sorry you’ve been dealing with this for so long—being sick for half your life is unimaginably tough, and it’s huge that you’ve finally gotten some answers. A celiac diagnosis can feel overwhelming (especially on top of being vegan!), but it’s also a turning point. Your body is about to start healing, and that’s hopeful! This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      foods

      By Scott Adams · Posted

      Yes, it is likely your villi healed, but if you are exposed to gluten regularly again the damage will likely come back and cause some potentially serious health issues.
    • CeliacNew
      Newly diagnosed, struggling

      By CeliacNew · Posted

      Hey yall! I am dealing with a new diagnosis. I have been sick in some sort of way for 10 years. I am 22. I can’t remember a time in the last decade I have not had some strange symptom. This last year it got way worse. I lost 40 pounds and had to drop out of school. I ended up getting and endo and blood tests and got positive results for celiac. I am looking for advice of ANY type. I am vegan so this is a big adjustment to add this to my diet. Thansk fro the help. 
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