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Stagnating recovery


Eric.C

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Eric.C Newbie

Hi

I got my diagnosis about 3 months ago and has been gluten-free since that. In the beginning I started to feel better right after just a few weeks with things like joint pain disappearing, more energy and improved bowel movements. However, it seems like my recovery has sort of stagnated and my stomach has begun feeling worse as of lately. I find it very strange because I haven't really changed much from when I first got my diagnosis and I'm very careful with what I eat and CC. Is it normal for symtoms to come back or what experiences do you have? And how long did it take you from going gluten-free to having normal bowel movements regularly?


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trents Grand Master

Welcome to the forum, @Eric.C!

Are you still consuming dairy and oats? It is very common for those with celiac disease to have or to develop additional food intolerances. It could be to almost anything but dairy and oats (even gluten free oats) are the most common offenders because their proteins are similar to gluten. 

Also, if you are relying on a lot of gluten free prepackaged food products you could be reacting to peculiar ingredients that are commonly found in ready made gluten-free foods such as xanthan gum. There are a lot of polysaccharides used in gluten free ready made food products to give them textures similar to conventional wheat products. Polysaccharides can be hard to digest.

Scott Adams Grand Master

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

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    • daniellelawson2011
      Thank you for the welcome and reply. The first test was tissue transglutaminase IGA and it was normal. The second test just simply says IGA and it was 638. You definitely answered my question, it sounds like im negative for celiac since the 1st test was normal, and that another condition has caused the abnormal result of the IGA. That's exactly what I was wondering. Im almost positive I have MS and I've read results are higher like that with early onset. Or it could be IBS. Hopefully the visit with the neurologist will give me even more answers and point to a final diagnosis. I really appreciate you taking the time to reply and for helping. Thank you so much!
    • trents
      Welcome to the forum, @daniellelawson2011! First, we need to deal with terminology here. When you refer to the "ttg" test I take that to mean the ttg-iga. And when you refer to the "iga" test I take that to mean total iga since the magnitude of the score would suggest that. Total iga is not a test for celiac disease per se. It is run in order to check for iga deficiency. If you are iga deficient, then the ttg-iga and other iga tests that are specific for celiac disease will be abnormally low and this would potentially produce false negatives. You are not iga deficient but, rather, your total iga is abnormally high. This can suggest underlying health conditions, some of them can be serious in nature.  https://labs.selfdecode.com/blog/high-iga/ "High IgA usually points to chronic infections or inflammation, though many disorders can raise its levels. High IgA does not cause symptoms. People show symptoms from their underlying health problem." One thing I might add and that is you must have been eating normal amounts of gluten for weeks/months prior to the blood draw for antibody testing. Testing while on a gluten free or gluten reduced diet will not yield valid results. Also, here is a primer outlining the various antibody tests that can be ordered to check for celiac disease:  
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    • Joe R
      Thank you for your advice. I appreciate the help. 
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