Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Avoid All Irritation Or The Intestines?


Mabiac

Recommended Posts

Mabiac Newbie

Does all irritation and inflammation of the small intestines destroy the villi for celiacs, or is it only gluten.

I mean....

Say I eat some spicey foods that disagree with my small intestines and irritate it.....will more villi be destroyed?

Will it lessen the healing time from the damage gluten has already done?

It seems that I've become lactose intolerance since I've been having my stomach problems from last year and milk products sometimes tend to rumble my abdomen and give me a bit of diarreah so I'm thinking it may be irriating my small intestines too.

Will that destroy the already fragile villi or slow the healing time?

I'm like "walking on egg shells" with every damn thing I eat now a days..lol.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Mabiac:

Welcome to the site. You have come to a good place. You will learn more from the good people here than you will from any other place.

To anwser your questions:

1: I you have been diognosised with Celiac D, you have Celiac and gluten will continue to distroy your villi, yes that will happen.

2. Spicey foods do not necessarity destroy your villi unless they have gluten contained in the spices.

(Although, if your system is damaged, spicey foods may irritate you compromised system).

3. Often when diognosed with Celicac, others find that they are often irritatated by diary as well in the beginning stages.

4. Ask as many question of us that you need to. We have all been there and done that.

There are no dumb questions here, just lots of people who have been through what you are gong though.

I would not have been where I am now without the help of these people here that have helped me so greatly. Don't feel shy about posting your concernes or questions. It is a scary sometimes. I have meet so many good friends here and I encourage you to stay with us and learn.

Read alot of posts here and you will learn so much. Good luck to you and post with questions as much as you need to. You will get answers to all your questions.

Keep with us, Lisa

Ursa Major Collaborator

Spices will not destroy the villi, but could slow the healing. Go easy on the spices for a while. About 80% of celiacs are initially intolerant to dairy as well as gluten, because the small intestine makes the enzyme that allows you to digest dairy, and it can't do that when damaged. Some people will be able to tolerate dairy again after being on the diet for about a year (some more, some less).

Not only gluten will destroy the villi, apparently, so will soy in people who are intolerant to it (I am intolerant to both soy and gluten).

Be wary of soy, many celiacs are intolerant to it as well.

Mabiac, just try and eat simple for a while, mostly foods naturally gluten free. With those you don't even have to worry.

In the meantime, rid your kitchen and bathroom of gluten. What I mean is, you need a new toaster if you eat gluten free breads, as it isn't possible to clean a toaster properly if you've used it for gluteny breads before. The same goes for wooden cutting boards and wooden spoons, plastic colanders (if you've used it for gluten noodles, you really can't get it cleaned properly and will contaminate your gluten-free noodles), scratched non-stick pots and pans (can't clean them properly).

Check your soap, shampoo, conditioner, lip balm, shaving cream (unless you use an electric razor) for hidden gluten (wheat germ oil, barley essence, whatever) and replace the ones that contain gluten with brands that don't.

Read ALL labels when shopping! It is amazing how many processed foods contain gluten. It is best and easiest to completely stay away from them. I hope you like to cook! :blink: (I don't, but I have to cook every meal for myself from scratch, too many intolerances)

Mabiac Newbie

Damn, I was wondering what happened to this thread!

I started another one in it's place thinking I may have deleted this one by accident, and THAT ONE seemed to have disappeared also.

Lisa

Thank you for the warm welcome.

Right now my suspicion of being gluten intolerant isn't so much scary as it's just frustrating trying to figure out where the hell this problem may have come from....lol.

Why is it so common yet so "unheard of"?

Ursula

Check your soap, shampoo, conditioner, lip balm, shaving cream (unless you use an electric razor) for hidden gluten (wheat germ oil, barley essence, whatever) and replace the ones that contain gluten with brands that don't.

You know what.

I thought it was just me until you mentioned "wheat germ oil".

I used a hair-care product who's main ingredient was WHEAT GERM OIL for about a month, before my intestinal intussuception.

Something told me to just throw it out, and started using gel.

But the weird part is I seemed to also have problems using "Zest" soap.

And I love Zest.

But after about a week of using it, I start getting "heartburn" problems, and I'm thinking perhaps it may be to acidic or have something in it I'm allergic to.

I'm glad I came to this site.

I got other things to share with you guys like how I had major problems with my dental fillings until I got them removed.

I can spend an entire day talking about that ordeal.

Ursa Major Collaborator

Hey, good for you for following your 'gut' instinct with the shampoo (pun intended)! I found that my shampoo caused me to have a terribly itchy scalp and rash. Since I've been using Dove shampoo and conditioner, and ivory soap, I am fine.

Buy yourself two books: "Dangerous Grains" by James Braly, and "Celiac Disease, a hidden epidemic", by Peter H. R. Green and Rory Jones. Those are fascinating reads and will answer almost all your questions. While I disagree with a few things in those books, they appear to be by far the best books out there on celiac disease.

To your questions: Doctors have been told for a long time that only people with the 'classic' symptoms of diarrhea, malnutrition and weight loss could possibly have celiac disease. Actually, those people are only the tip of the iceberg. It will likely still be a long time before doctors will get it. Medical schools are a huge problem, because they barely mention celiac disease at all for the most part. They are also still taught that celiac disease is very rare. So, they don't expect to see many cases and dismiss even the ones that are pretty obvious, diagnosing people with an easy diagnosis like irritable bowel syndrome (IBS), and sending them home with pills, instead of investigating what actually CAUSES the bowel to be irritated!

Mabiac Newbie

Ursula

To your questions: Doctors have been told for a long time that only people with the 'classic' symptoms of diarrhea, malnutrition and weight loss could possibly have celiac disease. Actually, those people are only the tip of the iceberg. It will likely still be a long time before doctors will get it. Medical schools are a huge problem, because they barely mention celiac disease at all for the most part. They are also still taught that celiac disease is very rare.

Yes, that's what threw me off.

I'm Black and overweight...plus my symptoms were constipation and not diarreah so I thought to myself I couldn't possible have Celiacs.

I didn't fit the profile.

But whether I actually have it or not, avoiding all gluten seems to get rid of the symptoms so it must atleast have something to do with the problem.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SusanJ replied to Jillian83's topic in Coping with Celiac Disease
      5

      Celiac and dermatitis herpetiformis has taken Me from Me

    2. - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    4. - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

    5. - knitty kitty replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,980
    • Most Online (within 30 mins)
      7,748

    Cathal Brugha
    Newest Member
    Cathal Brugha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.