Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Really Thinking About Starting A gluten-free Cooking/social Club


cgilsing

Recommended Posts

cgilsing Enthusiast

I've been throwing around the idea of starting a gluten-free cooking/social club in my area. I think it would be really fun to take turns making dinner at each others houses, having potlucks, maybe even asking some of the local restaurants to host us from time to time. celiac disease is trying on so many levels (especially in the beginning), but once you know how to cook the things you like and where to find the items you want, it's really not that bad......that is except for the social aspects. People quit asking you to come over for dinner because they don't know how to cook for you (or if they do ask, it's not enjoyable because you are terrified of what they are serving). It turns out that your favorite restaurant only has one thing on the menu that you can have and that's ice tea. You can no longer eat with eveyone when they carry in lunch at work, and the only thing at the church picnic you can eat is the potato salad you brought. Many of those things will never be the same again, but if I could organize a group that got together once a month and served nothing but gluten-free food, and hosted people who understood and could relate I think it would be really enjoyable!

Here is where I am.....I live in a town of about 12,000. There are a lot of surrounding communities that are close enough that members could commute from there too though. When I saw the hospital nutritionist about 1.5 years ago there was no celiac disease support group organized. However, I know there has to be people in the area with celiac disease. I lobbied to have some gluten-free stuff at the grocery store a few months ago and they have had a hard time keeping it on the shelves! Sooo...I know they are out there!! Does anybody have any ideas for how reach the right people with my idea? Does anybody have any suggestions for a club like that? Do you think there will be enough people for a club?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NicoleAJ Enthusiast

Well, you never know whether or not there will be enough people unless you try. You could always leave a posting on a community board or newsletter for the local hospital, at the local grocery store, and you could take out a small classified ad in the local newspaper. This sounds like a great idea, and maybe when I have a bit more time on my hands I'll try to start one in my area--let us know how it all works out.

lisaemu Contributor

I think thats an awesome idea and would definately be interested in it if there was something like that in my area...where are you from?

cgilsing Enthusiast

I'm from Central Illinois. We are about 2 hours west of Indianapolis, and about 1.5 hours east of St. Louis. There really aren't any sizable cities in the area where we can participate in their groups....soooo.....I think it would be really fun to start our own! Besides I like this idea better than a support group anyway. When I think of a support group, I think about sitting in a circle at the rec center saying "Hi my name is Christine, and I am a Celiac" I just hope there are at least a couple of people who want to do this too! It's hard to have a club with one person! :P

lisaemu Contributor
I'm from Central Illinois. We are about 2 hours west of Indianapolis, and about 1.5 hours east of St. Louis. There really aren't any sizable cities in the area where we can participate in their groups....soooo.....I think it would be really fun to start our own! Besides I like this idea better than a support group anyway. When I think of a support group, I think about sitting in a circle at the rec center saying "Hi my name is Christine, and I am a Celiac" I just hope there are at least a couple of people who want to do this too! It's hard to have a club with one person! :P

Lol thats what I think of too when I hear support groups. I think its an awesome idea, but you're a little fara way from me (well not THAT far..im in michigan). Do you know of other celiacs around you? Do you have a whole foods or trader joes or a store like that that you can advertise in?

cgilsing Enthusiast

Well, that's the thing....I only know of one other lady in town that has celiac disease....and I only know of her through mutual aquantances. I've never met her in person! I just keep hearing "Oh you have celiac disease! You know so and so's ex-girlfriend has that too!" It's a pretty little town....no Whole Foods here! We have a Kroger and an IGA. I thought about asking Kroger if they would let me post a flyer above the rice flour though! I wonder if they would let me?? That is one good thing about a small town.....strange requests like that might just be approved! :lol: I know there has to be more of us....it's just a matter of reaching people!

lisaemu Contributor
Well, that's the thing....I only know of one other lady in town that has celiac disease....and I only know of her through mutual aquantances. I've never met her in person! I just keep hearing "Oh you have celiac disease! You know so and so's ex-girlfriend has that too!" It's a pretty little town....no Whole Foods here! We have a Kroger and an IGA. I thought about asking Kroger if they would let me post a flyer above the rice flour though! I wonder if they would let me?? That is one good thing about a small town.....strange requests like that might just be approved! :lol: I know there has to be more of us....it's just a matter of reaching people!

I figured there was no whoel foods around you since u lived in a small town...my last college i went to was in a dinky town and definately NO whole foods..tho there was a food co op or health food store i think. Maybe you could try one of those around you? I would try the kroger thing- you can't lose anything by trying! Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cgilsing Enthusiast

Well.....no health food store for about 45 miles! I really wish we did have one, that would be a GREAT place to post a flyer! I'll talk to Kroger and see what they say....I'm also trying to get ahold of the nutritionist at the hospital for her suggestions. Maybe she knows some people :) I'll let you know how it turns out!

GFBetsy Rookie

Definitely ask the store if they will allow you to post a notice. Also, placing an ad in the newspaper is a great idea. A local grocery store here (in Utah) actually hosts cooking classes, and the gluten-free class (taught by a volunteer teacher) runs once a month or so. Also, you could look into community classes. Some communities offer classes through a local college - have you ever thought of finding out what it would take to teach one? Places that offer these classes generally send out a flyer advertising their community classes, so you wouldn't have to worry about advertising, and it would give you a chance to meet people who are interested in gluten-free cooking. Then you could establish your club and carry on after the class ends.

Oh, forgot! You could also contact the nearest Gastro-Enterologist, and offer your phone number for the office to give to newly diagnosed people. You could also ask if you could post a flyer in his/her office.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results

    2. - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    3. - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    4. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,455
    • Most Online (within 30 mins)
      7,748

    jscal6
    Newest Member
    jscal6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.