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What Type Of Doctor Do You See Regarding Your celiac disease?

glutenexpat

By glutenexpat
in Doctors

Recommended Posts

Luana D Newbie
Luana D
Posted

Hi cyclinglady,

I think you are correct on the test ordered by my NP. It was cheap. It was Tiss TGlutaminase IgA test. And I didn't have the lab run it through my insurance paid cash. It was 32.00 and if I paid for it there they would give me half off. So I said sure. I figured in case I might need further testing then they can run my   through my insurance. I'm not too confident with my NP. She doesn't have much suggestions or answers for me and just tells me that with my insurance I can go anywhere and see anyone..... makes me feel like she doesn't want to let on that she does not know what's wrong... I'm glad I came across this group. It's really informative and I appreciate your suggestions. I will visit my GI and hope for more answers. Oh I'm not sure I mentioned I have pre diabetes as well. Not sure it there is a connection or not..

I will it give up.... 

Aloha from Hawaii

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cyclinglady Grand Master
cyclinglady
Posted

Luana,

The TTG IgA test is very good, but like I said it does not catch all celiacs (like me).  It is a place to start.  If negative and you have symptoms that sound celiac-related (iron-deficiency anemia), it might be prudent to request the full celiac label.  See this algorithm for testing:

Open Original Shared Link

You should confirm that an IgA deficiency test was also run at the same time as the TTG IgA.  In the case if celiac testing, this test is used as a control test.  It tells you if the TTG IgA test actually works for you.  

It is rare to find a PCP, NP, etc. to screen for celiac disease.  It just is not on their radar.  They still think celiac disease is applicable to kids who are failing to thrive.  But celiac disease can develop at any time and you can be think or heavy.  You can also be symptom free!  

Learn more about the other tests: DGP and EMA.

Open Original Shared Link

There is a link with type 1 diabetes which is autoimmune like celiac disease.  There is no link to TD2.  I am diabetic too, like my Dad's family.  I am even thin.  Just my luck.  I urge you to research diabetes and prevent it from worsening as much as you can though diet and exercise.  There are lots of diabetes groups out there.  I manage on a lower carb diet.  I eat to my meter.  So, I am now just considered a prediabetic without any progression.   Do not wait for your diabetes to progress!  

Luana D Newbie
Luana D
Posted

Hi cyclinglady,

Thank you for your helpful info. I will look into those links and be ready when I see my GI.

I will update when I get more information.

 

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      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
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      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
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