Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh From Shampoo? Food? Eczema Or Burning Pimples?


Ksmith

Recommended Posts

Ksmith Contributor

HI all,

So here's what I got...btw, I have been attempting being truly gluten-free for about 6 months, but I do eat oats, and I haven't paid any attention to wheat in shampoos, etc...I have got the weird eczema looking DH on one of my elbows once and it is still kinda there, but for the most part it has healed. Recently, about a week ago, I thought I had got some spider bites because I had two painful bumps on my back and three, in a line, a little below my armpit. They started to burn and almost looked and felt like little bee stings. THen a couple of days later I got 5 more, fairly close to the ones near my armpit. After the burning subsided a little, they scabbed up and started itching. They are red bumps with little scabs in the middle of each. I have been very good about not itching them. That said, I am confused because I have not been eating gluten and I don't understand why I would get such a painful DH rxn (if that is what it is). I have never got these bumps before, and I haven't had any bad gluten stomach aches, so I don't think I had consumed gluten on accident. However, I do drink beer, which doesn't bother my stomache and my shampoo had wheat in it. Anyway, I guess I am just asking y'all's opinion. Does this sound like DH? Should I not use that shampoo? Are skin products that have wheat in them harmful to celiac's skin, but won't bother their digestive system? Thanks so much for your help!

~K


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi K--Most brands of oats that you find at the grocery store are contaminated. Eating oats is a personal decision--I don't chance it. Beer (regular) has gluten and even if you don't *feel* a reaction, there is damage occuring. Not all Celiacs get GI issues. The fact that your dh is flaring up means that you are ingesting gluten. The problem with shampoos and lotions is that it is so easy to get some into your mouth. Since you are still experiencing symptoms, I would suggest cutting out the oatmeal, the beer, and use personal care products that are free of gluten.

Ursa Major Collaborator

I agree with Patti. If you've been drinking beer, you have not been gluten free. I find that shampoos with wheat germ cause an itching rash on my scalp.

Plus, even when gluten free, the deposits under your skin that cause DH take one to five years to clear, meaning, you can get DH for quite a while after going gluten free.

And, by the way, those outbreaks you describe sound a lot like DH. I say see a dermatologist to have a skin biopsy taken before you truly go gluten free. A firm diagnosis of DH will automatically give you the diagnosis for celiac disease as well. Because only celiac disease causes DH.

Ksmith Contributor

Thanks guys. I guess my real question was whether or not the bumps sound like DH. I understand the oats and beer stuff, and I only buy the McCann's Oats which are supposedly ok--which I actually haven't had for about a month and a half, anyway. The beer on the other hand is something I have on occasion and I haven't had any in quite some time...so why the sudden break-out and not break-out after I ate a douhgnut or bagel or something years ago? Something that has a much higher gluten content than beer (which seem to have fairly low doses of gluten 20-100 ppm, depending on the brand, some can be much higher, but I avoid those ones). I would think bigger foul-ups I've had in the past would be far more detrimental than a light beer. That's all that I am saying. I have also been using the same shampoo for years now. BTW, I have GI issues when I consume gluten...I am not a hidden gluten celiac. Thanks yall:)

Ursa Major Collaborator

Now that you qualified what you said in your first post, I understand you're not a hidden gluten celiac. But it was easy to misinterpret. Sorry about that.

Still, I get the rows of bumps like you, and for years were paranoid about getting bitten by things I could never see! Like 'mosquito bites' in the winter, or 'flea bites' all in a row, which turned into ugly blisters when scratched (and we don't have pets, and nobody else was getting 'bitten'). Now I understand it was DH all along. I suspect you have the same problem.

Anyway, my advice about having it biopsied by a dermatologist still holds.

julie5914 Contributor

I have 2 on my back as well, and I came here looking for the same. Is it DH? Mine don't really itch though. I got one on my nose, and had some strange blisters on my lip. They weren't outside my lip like a cold sore, and they weren't inside my lip like a canker sore, they were just right on my lip, more clear than red. The ones on my back hurt deep though, to the muscle.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    4. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.